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Posted March 15, 2023

The 2023 Grandview Kids Power of One Award

Adrian Polidano

Nominate a member of Team Grandview for the prestigious Power of One award

At Grandview Kids, we take great pride in our most valuable asset – our team.

Each member of Team Grandview gives their best every day. With every appointment, program or service delivered, our clinicians, staff, students and volunteers help build a welcoming and inclusive environment for all families. All Team Members sparkle, and we’re asking for your input to help them shine.

Has someone on Team Grandview made an impact on the life of your child, youth or family? Nominate them for the Power of One Award.

Any member of Team Grandview can be nominated, including physicians, clinicians, staff, students and volunteers.

One team member will be selected to receive the Power of One award, which will be presented at our June annual Staff Barbeque.


Submit your nomination

Nominations are now open using this online form until Friday, April 28, 2023.

Questions? Please email Communications@grandviewkids.ca.

Interview with Scott Bremner, author of Durability: Braving the non-disabled world

We recently had an interview with Scott Bremner, the author of Durability: Braving the non-disabled world. Read what he had to say about his book, the writing process and his inspirations.

Scott Bremner, sitting in a chair posing for a photo wearing plaid shirt.
Scott Bremner

What inspired you to write this book about your life?

I believe it was the anniversary of the Ontarians with Disabilities Act, the first of two legislative bills to increase accessibility in this province. All these people who had been involved in advocating for the disabled community were in one room. Former Lieutenant Governor of Ontario, the late David Onley, and David Lepofsky, lawyer and advocate, were there, along with current and former politicians and members of the disabled community. 

While there, I met Marie Bountrogianni, who wrote the follow-up legislation: the Accessibility for Ontarians with Disabilities Act, passed in 2005. That was the final push I needed to write the book hearing the unique perspective of this woman—the one who put pen to paper on significant legislation. The idea of writing a book had been in my head for years, but seeing those people all gathered showed me that people cared and still cared. An entire community had been working on getting the idea of accessibility out there in the public eye for years. I knew from that day the book would happen in some way. That was inspiring for me. I saw a path forward, a way to do this.

What was one of the most surprising things that you learned when creating your book?

It wasn’t the book or the writing itself, but everything after it was written. Answering questions like, “how are you getting the book out there?” and figuring out whether to publish the book traditionally versus self-publishing or thinking about how to design the cover. It was all very much trial and error. Durability was written for a specific purpose, so I want as many people as possible to read it.

Scott, author of Durability, holding up his book, Durability.
Scott holding his book, Durability.

What does the title mean to you? Why did you choose it?

It was the name of the show I hosted on Rogers TV for five years. I like it because it’s always had two meanings: Durham ability (I live in Durham Region) and Durability, which means strength. People with disabilities go through a lot. We’ve been put through a lot and have had to handle a lot, personally and professionally.

Durability might as well be the motto for the disabled community. But that doesn’t mean those challenges don’t affect us because we face barriers constantly. We get through the day and meet challenges at any age. That doesn’t mean we don’t need help. That we don’t need more people to get involved in the accessibility movement. We do. To progress, to gain traction, readers of all kinds benefit from knowing the adversities we face and have faced in the past.

Can you tell me a little bit about the book? How will individuals (with or without disabilities) benefit or learn from your book? What do you hope readers will gain from reading your book?

The book was written in three sections: the first part is a memoir, the second is an advice guide for people with disabilities and parents with children with disabilities, and the third part is a political history of disability and accessibility legislation throughout the province, the country and North America. As a journalist, who went to school and had a career in journalism, it was important for me to talk with experts about topics important to persons with disabilities.

There are things I didn’t know myself, but I learned from researching while writing my book. That is part of the joy of writing and journalism for me, finding out something you didn’t know and getting clarity for people, especially those who were there, and that was an interesting experience.

I’ve had a lot of great conversations with politicians and stakeholders. I asked them not to hold back. It was the same talking with my friends and family about how they saw things. These people were real with me. Even though I’ve made mistakes, looking back at the time, I thought I was making the right decision because when you’re 10, you don’t think about how those decisions will affect your 30s or beyond. I’ve grown as a person, and I matured while writing Durability. You learn just as much from failing as you do from succeeding. If I can make things easier for people by writing a book where you can understand other people’s points of view, it benefits the readers.

Scott Bremner received the Queen’s Platinum Jubilee Medal in 2022.  

Scott’s book is available on Amazon and at Blue Heron Books in Uxbridge.

Follow Scott online & his other social media platforms:

www.durability.ca 

Facebook

Twitter

Instagram

TikTok

World Birth Defects Day is observed on March 3 each year and unites people and organizations working in the field of birth defects, also known as congenital anomalies, congenital disorders, or congenital conditions.

Globally, an estimated eight million newborns are born with a birth defect every year, of which around 300,000 die due to associated complications. Although it started as an annual event, this day has now become a movement for significant improvement in birth defects prevention and care.

Grandview Kids’ client, Shayaan, was born with a birth defect called Amelia. His mother and a member of the Family Engagement Team at Grandview Kids, Fadia, tells their story:

“The day my second child was born was not a day of joy or celebration for us, but a day of mourning. Our son, Shayaan, was born with a congenital anomaly called Amelia, which means he was born without both arms above the elbows.

Shayaan as a child in a painting/colouring class.
Shayaan as a child.
Shayaan learning to eat.

As parents of a healthy first child, we never anticipated having a child with a birth defect. Shayaan’s disability brought a multitude of questions and fears, such as how he would learn to walk, use the toilet, eat, and even get married. We went through all the stages of grief, including denial, anger, guilt, depression and finally, acceptance. It took me five months to come to terms with reality and nearly a year for my husband.

Taking Shayaan out in public was another challenge for us as we struggled to cope with the stares, whispers and hurtful comments. Despite our efforts to conceal his disability, we found that we could not. However, it was our seven-year-old son who taught us to focus on the positives. He pointed out that Shayaan still had eyes, ears and tiny feet, and we realized that we had been fixated on what our baby lacked instead of what he possessed.

Shayaan’s disabilities presented new challenges as he grew older, but we found comfort in the network of supportive parents we met through various support groups. We had genetic testing done twice, which revealed that Shayaan’s birth defect was not genetic. Not all birth defects are caused by gene mutations; some are caused by unknown reasons.

Shayaan, now, as a teen.

Now, at 16-years-old, Shayaan has undergone 16 surgeries and continues to experience pain, but he remains a remarkable young man with aspirations for the future. We quickly learned that he always found ways to accomplish things, and we allowed him to navigate challenges on his own. Shayaan has become an advocate and has been partnering in research to bring awareness by sharing his personal stories and his lived experiences.”

Passing the “Grandview Kids sparkle”

In a recent ceremony broadcast to #TeamGrandview, outgoing Grandview Kids CEO Lorraine Sunstrum-Mann “passed the Grandview Kids sparkle” to new CEO Tom McHugh. Here’s what they said to one another:

Lorraine: “Tom, it’s my absolute honour to pass you the Grandview Kids sparkle… This sparkle represents the magic at Grandview Kids. It’s that warm feeling you get when you walk through the doors. It’s the way we work together to support clients and caregivers. It’s the passion that unites our talented and dedicated team. It’s ingrained into our culture as something we celebrate, cherish and work hard to create. Tom, I now pass the sparkle to you with great pride. Preserve it, amplify it because the future is so bright.”

Tom: “Thank you, Lorraine. I feel privileged to take on the enormous but exciting responsibility of maintaining the Grandview Kids’ sparkle–something I noticed as soon as I arrived. With great care and intention, I am committed to building on the momentum of Grandview’s legacy. Harnessing the undeniable skillset of #TeamGrandview, and grounding ourselves in our shared purpose of supporting children, youth and families in the Durham Region, I am confident that our sparkle will grow brighter and brighter.”

Lorraine passes the Grandview Kids “sparkle” to Tom.

Meet Grandview Kids’ New CEO, Tom McHugh

Watch Tom McHugh’s introductory interview below as he commences his exciting journey with Grandview Kids.


More about Tom McHugh

Tom brings significant experience to the role as a respected leader who has led complex organizations through times of change and expansion, previously spending eight years in a CEO role at Tillsonburg District Memorial Hospital and Alexandra Hospital – Ingersoll. For another decade, he served as a Regional Vice President of Cancer Care Ontario. Over his career, he has held executive and senior-level leadership positions at London Health Sciences Centre and Lakeridge Health.

Tom began his career as a registered Occupational Therapist, supporting his appreciation of the rehabilitation services Grandview Kids is well-known for offering in the Durham Region. Supplementing his Occupational Therapy training, Tom earned a master’s degree in public administration, focusing on health policy. In addition to his experience in the field, Tom brings a deepened sense of care and understanding to his role at Grandview Kids acquired through his lived experience as a parent to four children, two with a developmental disability.

As the construction of the New Grandview Kids headquarters inches closer to completion each day, Tom undoubtedly enters the CEO role at an exciting time for the organization. Through his storied experience and infectious excitement for change, Grandview Kids is looking forward to learning and growing under Tom’s leadership.


Lorraine, thank you for your dedicated service and incredible leadership over the last 11 years. We wish you all the best in your retirement.

Tom, welcome to #TeamGrandview. With you on our team, our future is sure to be bright!

Rare Disease Day is an international event held on February 28 to raise awareness about the impact of rare diseases on people’s lives and to emphasize the need for research. Canadian families with rare illnesses are facing extraordinary challenges. These include misdiagnosis, unnecessary surgeries, social isolation, financial hardship and lack of treatment options.

Grandview Kids client, Xander, was born with a rare disease called Moyamoya. His mother, Laura, tells their story:

Baby Xander after surgery.
Baby Xander
Baby Xander after surgery.
Xander after his surgery.

“At 10-months-old, my son had a seizure, which we then found out was a stroke. The stroke damaged the right side of the brain. We were searching for answers as this was completely out of the blue. Once the doctors did an MRI and an angiogram, they found out that he had a rare condition called Moyamoya. The meaning of “a puff of smoke” in Japanese. This is where the blood vessels in the brain narrow over time, and it looks like they have literally disappeared in the MRI.

His right side of the brain and left side were narrow, so it was decided that he get bilateral brain surgery to help with the blood flow and to help prevent another stroke from occurring. But after only being home for four days, he had another stroke, this time damaging his motor control on the left side.

We ended up at Holland Bloorview for rehabilitation, where they worked with him to gain strength back in his left side, mainly his left hand. Since having the surgery, he is doing much better, but the doctors still must watch to make sure that other parts of the brain are not narrowing as this is a progressive disease and there is no cure. 

As parents, it’s extremely difficult to deal with this diagnosis, but he has shown so much improvement. That makes it a lot easier to navigate his diagnosis and relax a little bit. We hope that one day there will be a cure.”

February 13, 2023

Ajax Public Library and Grandview Kids signed a formal partnership agreement on Friday, February 10, 2023, reaffirming a shared commitment to education, inclusivity and community engagement. The agreement includes establishing an Ajax Public Library branch within Grandview Kids’ new Paediatric Centre of Excellence, currently under construction in Ajax. The dedicated Ajax Public Library – Grandview Kids Branch will ensure the surrounding community has access to vital services and resources, while also supporting the ongoing need for inclusive and welcoming community spaces.

We are inspired by and appreciative of the support we’ve received.

Tom McHugh, Grandview Kids CEO

With a focus on hope, belonging, discovery and celebration, the new Grandview Kids will be a Centre of Excellence in paediatric rehabilitation, set to open in fall 2024.

Grandview Kids currently provides specialized supports to children and youth with communication, developmental and physical needs at eight locations across Durham Region. Grandview Kids’ new, welcoming, state-of-the-art headquarters will support seamless, coordinated and client-driven care – home to a mix of rehabilitation, medical and clinical services, as well as education and research activities. The new Centre will help reduce wait times and improve access to a broader range of services for young people with disabilities and their families.

The Ajax Public Library – Grandview Kids Branch will be open to all members of the public during the facility’s regular operating hours. Branch customers can look forward to borrowing Sensory Kits and a mix of fiction and non-fiction items, as well as requesting items from any other Library location for pick-up at the Grandview Kids location. Computer access and educational programming will also be offered.

Our unique partnership will improve the service we deliver to our shared community.

Sarah Vaisler, Chief Librarian and Executive Officer of Ajax Public Library

The two organizations previously collaborated on other initiatives, including “Sensory Story Times” and “Sensory Support Kits.” Both are available from Ajax Public Library, but created with input from Grandview Kids to offer inclusive learning experiences in-library or at home. Storytimes are open to all, and kits can be borrowed by anyone with an Ajax Public Library card.

  • Tom McHugh (left) and Sarah Vaisler (right) shaking hands after signing the MOU.
  • Tom McHugh (left) and Sarah Vaisler (right)
  • Grandview Kids CEO, Tom McHugh
  • Deputy Mayor and Regional Councillor for Ajax (Ward 1) Marilyn Crawford

About Ajax Public Library

Ajax Public Library is the gateway to information and resources that improve the quality of life, foster life-long learning, encourage community involvement, and meet the varying educational and social needs of all members of its communities. More information about current Library services can be found on the Library’s website at www.ajaxlibrary.ca.

For updates, be sure to follow the Library on Facebook, Twitter, LinkedIn, or Instagram.

About Grandview Kids

Grandview Kids – founded in 1953 – is an independently operated, not-for-profit Children’s Treatment Centre in Durham Region. A Centre of Excellence for paediatric assessment, care and rehabilitation, Grandview Kids provides specialized programs, medical services, and outpatient clinical treatment and support to thousands of children and youth with physical, communication and developmental needs, as well as support for parents and caregivers. Its mission is to help every child and youth live life at their full potential. Learn more at grandviewkids.ca or follow @GrandviewKids on Facebook, Twitter, Instagram and LinkedIn.

Media contacts

Avori Cheyne

Chief Communications Officer

Grandview Kids

647-631-2668 (cell)

avori.cheyne@grandviewkids.ca | www.grandviewkids.ca


Kiley Percy

Coordinator of Marketing and Communications

Ajax Public Library

905-683-4000 ext. 8819

kiley.percy@ajaxlibrary.ca | www.ajaxlibrary.ca

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World Down Syndrome Day – March 21

On March 21, we celebrate World Down Syndrome Day by showcasing the abilities, contributions, and experiences of people with Down syndrome. It also aims to educate, raise public awareness and...

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