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Posted June 29, 2023

Summer Self-Care Bucket List Challenge

Adrian Polidano

Written by Grandview Kids Peer Navigator Jacki N.

For the past few summers, I have sat down with my four children and created a Summer Bucket List. We brainstormed 15 items that we wanted to do in the summer, then constructed our list as a family. Going to a splash pad, hosting a family baseball game, and visiting an ice cream truck always seem to make the chart. Each year, we check off most of the list, and I can prioritize what is important to my kids over the summer.

But I was thinking I may put a spin on it this year…

Self-care is essential. When you fill your own bucket, you are a better parent and caregiver. That is why, this summer, I have decided to create my own Self-Care Bucket List (and don’t worry, my children are still getting their Bucket lists). I am going to challenge other Grandview parents and caregivers to do the same thing.

By thinking about my wants, priorities and dreams, I am practicing self-care. Self-care replenishes our energy, focus and positivity; it ensures our needs are being met. So often, we get caught up in the important role of taking care of others that we forget about ourselves.

I recognize that taking time away for some may be difficult due to your child/ren’s needs. Self-care doesn’t need to be fancy or expensive, but it should be meaningful and customized for you. Self-care looks different for everybody. Taking time to rest, re-charge or indulge means you will have more energy and strength to take on the next step in your parenting and caregiving journey.

Let’s see how you can commit to better self-care this summer.

Start your own Summer Self-Care Bucket List:

Grab a pen and paper and write down at least five things you want to do this summer; this equates roughly to one thing every two weeks. Think of places you may want to visit, something you have been putting off, or a new food you want to try. These items can be things you do with your loved ones or on your own. They also can be free or have a cost. The only requirement is that they are what you want to do.

Once your list is complete, put it in a location that is easily visible. Take pleasure in checking off the items on your list and loving yourself.

Here are some ideas from our Grandview Kids’ Peer Navigators’ Summer Bucket Lists:

  • Read by the water
  • Ride a roller coaster
  • Bake a cake
  • Have a spa day
  • Visit a new place
  • Take a course and learn something new
  • Bike ride in a scenic area
  • Watch a thunderstorm on the porch
  • Attend a concert
  • Revisit your love of woodworking and build a bench
  • Get hair done
  • Go on a day trip with extended family
  • Have a night away or date-night with your spouse
  • Try a new restaurant
  • Spend the day with faraway friends/family
  • Walk outside every day
  • Try Pilates
  • Watch a sunset and a sunrise
  • Start painting again

Go on… get started! What will fill your bucket?

June is National Migraine & Headache Awareness Month (MHAM). Today aims to raise awareness, eliminate stigma, and strengthen community bonding for those within the headache, migraine, and cluster communities. For 2023, MHAM’s theme is Educate Yourself, Educate Others. Here is some general information and resources about headaches and migraines and their impact on the headache community.

The word “headache” is a broad term used to describe pain in the scalp, head and neck. There are many different types of headaches. They may be primary conditions such as tension headaches, migraines, and cluster headaches, or they may occur due to underlying health conditions. Tension headaches are caused by tense muscles around the head and neck, often due to stress, anxiety or depression and typically feels like dull pressure around the head. Tension headaches may also be triggered by alcohol, too much caffeine or caffeine withdrawal, dental problems such as frequently grinding your teeth or clenching your jaw, eyestrain, keeping your head in one position for a long time or not getting enough sleep.

A picture of a woman experiencing a headache and massaging her temples.
The word headache describes pain in the scalp, head and neck.

The exact cause for cluster headaches isn’t known and, unlike tension headaches, they’re not associated with many triggers. These types of headaches are characterized by sudden, recurring attacks known as cluster periods, which can last from days to months and are followed by a remission period when the headaches stop. A cluster headache consists of extremely severe pain situated in or around one eye that can spread to the rest of the face, head, and neck.

A migraine headache is a neurological condition characterized by recurrent episodes of moderate to severe head pain, often accompanied by additional symptoms such as nausea, vomiting, sensitivity to light, sensitivity to sound, and sensitivity to smells. Some individuals may also experience them due to visual disturbances, such as flashing lights or blind spots, known as an aura. Migraines can be disabling and can have a significant impact on a person’s daily life, causing them to miss work, social activities, and experience reduced productivity and overall well-being. These headache episodes can last for hours or even days. Migraine pain is usually described as throbbing or pulsating and is often felt on one side of the head, however, it can also affect both sides. Although migraine affects three times more women than men, it can be equally disabling in both genders. Migraine often starts at puberty and mostly affects adults in their productive years, but it can also be present in children and the elderly.

For more information, visit:

  • https://migrainecanada.org/migraine-awareness-month/
  • https://www.migraineheadacheawarenessmonth.org/

Social ABC Team: Vareesha Khan, Karen Jagne, Janicka Auguste

Social ABCs is a caregiver-mediated program designed for children with social communication delays. The goals of the program include: helping children send directed, intentional vocalizations and helping caregivers and children share positive, meaningful emotions with each other. Social ABCs is one of the three caregiver-mediated programs offered in the Durham Region. Families are invited directly by the Ministry of Children Community and Social Services to enroll.

Social ABCs principles are implemented during natural, child-led play-based activities and daily routines that are fun and intrinsically motivating for your child. We directly coach caregivers to use the strategies with their child. The caregivers are directly interacting with their child, and clinicians get to celebrate the success with them. For this reason, the program is offered in a hybrid model of virtual and in-person sessions for the generalization of skills from in-centre to within families’ homes. 

Bath time, going to the park and snack time are some examples of daily routines that can be fantastic opportunities to create meaningful interactions with your child. These activities naturally encourage being face-to-face, being playful and allow you to share smiles and laughs with your child.  Children learn best when they are happy and feeling their best. Using naturally motivating activities where you and your child are engaged and having fun promotes bonding and further builds on social communication skills. 

To learn more about this program, please visit https://grandviewkids.ca/caregiver-mediated-programs/.

Written by Maritza, our Grandview Kids Research Coordinator and Knowledge Broker.

May 24 is National Brother’s Day! This day has been around since 1997 when it was created by a woman named C. Daniel Rhodes in honour of her brother.

Here is the story of one of our Grandview Kids Staff, Maritza and her younger brother, Jamie:

“I was 6 years old when our family adopted my baby brother from Peru. My brother Jaime is strong, he has a very good memory, and he knows the lines of every Marvel movie. Jaime has a diagnosis of autism and bipolar disorder and currently lives in an adult group.

Maritza and her younger brother, Jamie.
Maritza and her younger brother, Jamie, as children.
Both siblings playing at the park.
Both siblings playing at the park.

I would like to say when I was younger, I was always patient, kind and accepting of my brother, but the truth is there were many times I felt frustrated, embarrassed, or hurt by some of his behaviours (especially when we were out in public). While growing up as a sibling to a brother with complex needs had its challenges, it also had many joys and gave me a level of compassion and understanding that I think is pretty unique to other siblings like me.

Over the years, I have grown to appreciate the parts of Jaime’s world that he has chosen to share with me. Sometimes when we have a visit, Jaime can be very quiet, and other times he will communicate with me through movie lines. For example, if he is upset, he will repeat lines spoken by Marvel villains, and if he is feeling a little silly, he might be listing off Tony Stark lines. Most often, however, Jaime will simply hold my hand and try to take my French fries when I am not looking.

Jamie (left) and Maritza (right).

In the last few years, I have seen my brother be disproportionality impacted by the pandemic, which has been very difficult for our entire family. When I see how much work still needs to be done to make our community more inclusive, it motivates me to keep contributing to research that aims to promote meaningful change within the disability community.

As I continue to develop in my role as both an advocate and caregiver for my brother, I am humbled by all that my brother has taught and continues to teach me. Thank you, Jaime, and happy National Brother’s Day!”

Every year, on May 15, International Day of Families is celebrated throughout the world. This day highlights the significance of family and its value in society. Here is the story of one of our Grandview Kids’ Families, Debbie and Elliot:

“It has always been our mantra to give back to the community that helped Elliot so much when he was younger. Between his diagnosis, Speech-Language and Occupational Therapy, as well as Physiotherapy, he learned to talk and walk again. Grandview Kids had become part of our family and village, and we would not have Elliot where he is today without them. Grandview Kids opened so many doors and opportunities for Elliot later in life, including supporting him in writing his first journal article for the Canadian Journal of Autism Equity, as well as attending many public speaking and fundraising initiatives.

YAC members, Brad and Elliot.
Elliot and his mom, Debbie.

It was through his involvement in the Rec Therapy Program that he learned to love sports, and it ignited the passion in him! He is now on a team that has garnered international attention. Elliot is the Co-Captain for the Oshawa Vikings Mixed Ability team where his team came in second out of 24 other countries in the International Mixed Ability Rugby Tournament in Cork, Ireland, in June 2022.

Recently, he was selected by the MARI’s (Mixed Ability Rugby International) elite team to go join athletes from around the world to play in a competitive game in Belfast, Ireland, this May. From a young child who had many coordination issues to a full-fledged international and world athlete, Grandview Kids taught him that the sky is the limit and nothing is impossible. Elliot has turned his passion into a job and has two job titles at the Abilities Centre as a Physical Fitness and Literacy Associate, as well as a Mixed Ability Sports Facilitator. 

I am a proud member of the Family Advisor Council (FAC), as well as a standing member of the Adolescent Transition Committee, using our lived experience moving through the various stages of Elliot’s life to help pave a smoother path for others. Though many times, we were in unchartered territory and faced many barriers; my hope is that by sharing these experiences, we can make the transition process much easier for other families.

Elliot also volunteers for the Youth Advisory Council (YAC) and often is asked to give his insight into issues facing youth with disabilities in employment, so he too uses his lived experience to help break down barriers for others.

Elliot, holding his book: Mateo’s Mixed Ability Match

Elliot and I recently wrote a children’s book called Mateo’s Mixed Ability Match, which details our experience at the IMART tournament. Elliot and I often work in tandem. We hope that retelling our stories and providing insight into our experiences in sports, employment, and disability advocacy will help others realize that their child has potential and that we should all dream big. Every child and family deserves that chance to spread their Grandview Kids’ sparkle!”

As Grandview Kids embarks on expanding its reach in research, innovation and knowledge mobilization, it has recently welcomed Dr. Fiona Moola as a formal Research Associate. Dr. Moola is an Associate Professor at the Toronto Metropolitan University and comes with a long history of research excellence across many children’s hospitals in Canada. She is also a status-only professor at the Dalla Lana School of Public Health and Rehabilitation Sciences Institute at the University of Toronto. Dr. Moola is also a Registered Psychotherapist (Qualifying) and operates a small therapy practice for kids and families. Dr. Moola is the second Research Associate to join Grandview Kids.

Grandview Kids is pleased to welcome Dr. Moola as our newest Research Associate. Partnering with her, and harnessing her incredible passion and expertise, we will advance our research efforts to deliver more innovative, evidence-informed and culturally safe services for thousands of children and youth with communication, developmental and physical needs.

Tom McHugh, CEO, Grandview Kids
Maritza Basaran, Dr. Taryn Eickmeier, Dr. Fiona Moola and 
Nivatha Moothathamby posing for a photo at the Grandview Kids Main Site in Oshawa shortly after welcoming Dr. Fiona Moola as Grandview Kids' new Research Associate.
From left to right: Maritza Basaran (Grandview Kids), Dr. Taryn Eickmeier (Grandview Kids), Dr. Fiona Moola (TMU) and Nivatha Moothathamby (TMU)

The partnership is built on the founding values of Grandview Kids: Caring and commitment, whole-child and family-centred, trust and respect, innovation and continuous learning, accountability, and excellence. Together with Dr. Fiona Moola, Grandview Kids Executive Lead of Research, Innovation and Knowledge Mobilization, Dr. Taryn Eickmeier, will be able to inform culturally-safe practices to support all clients and caregivers. This partnership advances a commitment to engage children, youth and caregivers in research and innovation – especially in equity-deserving and marginalized communities.

Over the past three years, I have enjoyed many research-interactions with Grandview Kids. Their research is deeply rooted in an ethics of care, humility, listening, decolonization, relationality, and reciprocity with researchers and participants. It brings me great joy to join Grandview Kids as a formal Research Associate in partnership with the Toronto Metropolitan University (TMU). Together, across Grandview Kids and TMU, I look forward to elevating and amplifying paediatric disability research and discovery in Canada with a particular emphasis on listening to the voices of marginalized communities through an equity lens. I feel privileged and honoured that Grandview Kids has generously opened their doors. I look forward to leaving a lasting footprint on paediatric disability research in Canada with Grandview Kids.

Dr. Fiona Moola, Grandview Kids Research Associate

As the only Children’s Treatment Centre in the Durham Region, Grandview Kids is committed to ensuring all children and youth have equitable access to developmental and rehabilitation services. Furthermore, it is imperative that these services are evidence-informed and ethical. Partnerships with researchers, like Dr. Moola, can help ensure clinical and medical staff are delivering the best available therapies and treatments to clients, in a way that supports goals that are meaningful for each family.

More information about Dr. Fiona Moola and the Grandview Kids Research, Innovation and Knowledge Mobilization portfolio can be found on our Research page.

About Dr. Moola

Dr. Fiona J. Moola is an Associate Professor in the School of Early Childhood Studies in the Faculty of Community Services at Toronto Metropolitan University. Dr. Moola is a Canadian-South African who is the daughter of anti-apartheid activists from South Africa. Dr. Moola is a woman of colour.

Dr. Moola completed Undergraduate, Masters, and Doctoral Degrees at the University of Toronto, graduating in 2011. She completed a Post-Doctoral Fellowship at Concordia University in 2012 before joining the Faculty at the University of Manitoba. Dr. Moola comes with a long history of excellence across many children’s in Canada where she has maintained many lines of research. These include a) children with disabilities, play, and physical activity, b) childhood disability and the arts, c) marginalized childhoods, and d) childhood disability, narrative, and storytelling. Dr. Moola also maintains ongoing lines of research in Indigenous childhoods and children’s mental health.

Dr. Moola’s research is funded by the Social Sciences and Humanities Research Council of Canada, the Canadian Institute for Health Research, TMU, VERTEX, the Holland Bloorview Foundation, and the University of Toronto. Dr. Moola’s work is strongly committed to principles of critical health psychology, social justice, and anti-oppression. Thus far, Dr. Moola has contributed 55 publications (articles and book chapters) to the academic peer reviewed literature. Fiona is a Registered Psychotherapist (Qualifying) and has a small therapy practice. Fiona also teaches and delivers equity, diversity, and inclusion workshops. Dr. Moola is delighted to join Grandview Kids as its second Research Associate.

Media Contact

Avori Cheyne

Chief Communications Officer

Grandview Kids

647-631-2660

Avori.Cheyne@grandviewkids.ca

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Rare Disease Day – Laura and Xander’s Story

Rare Disease Day is an international event held on February 28 to raise awareness about the impact of rare diseases on people’s lives and to emphasize the need for research....

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