Awareness Days

Celebrating Stroke Awareness Month!

Zoey’s story began with two silent strokes before she was even born. These strokes in utero would lead to a diagnosis of right-sided hemiplegia cerebral palsy at 18-months-old. While cerebral palsy is part of her life, it does not limit 11-year-old Zoey. Today, she plays pickleball and basketball without hesitation, fills sketchbooks with art, bakes in the kitchen and laughs with her siblings, Miles and Quinn. Zoey’s parents, Jessica and AJ, prioritize family time, whether that means a visit to the zoo, watching cooking shows, playing UNO or Snakes and Ladders, or simply sitting together in the living room for movie nights. Their dog, Oreo, is never far behind and extended relatives, including great-grandparents, are part of her strong circle of support. Zoey’s journey is not defined by what happened to her, but by everything she has done since.

As a toddler, Zoey’s parents noticed that she was not hitting age-appropriate milestones and seemed to favour only the left side of her body. Her right hand often stayed in a fist, her toes curled under and she did not seem aware of her right side. “It was like she didn’t realize she had a right hand at the time,” they shared with their paediatrician while raising their concerns. That led them to testing at SickKids Hospital, where an MRI revealed that Zoey had experienced two strokes before birth. Like many parents receiving a new diagnosis, Jessica and AJ were left wondering what this would mean for Zoey’s future, independence and everyday life.

The diagnosis brought both uncertainty and the supports they needed. A referral was made to Grandview Kids, a place that would become much more than a therapy provider for Zoey’s family.

Zoey began physiotherapy, occupational therapy and participated in social work groups at Grandview Kids. Beyond the excellent clinical care, the welcoming, warm and “full of life” environment at Grandview Kids stood out immediately. Kids were not being called in for “appointments,” rather they were being invited to play. Therapies were play-based with goals set around what Zoey enjoyed, and because of this, Zoey thrived.

With the support of her care team, she worked on strengthening her right side. She wore an ankle-foot orthotic (AFO) on her right leg and used arm splints to encourage both hands to work together. “Grandview helped me use my right hand a lot,” Zoey says. “And they helped me learn how to walk up the stairs.” As a toddler, she relied on the use of a walker but with determination, grit and encouragement, she progressed. Today, she runs onto a soccer field without supports.

To Jessica and AJ’s surprise, the impact went far beyond physical development. Grandview Kids helped build Zoey’s confidence, resilience and her sense of belonging. Being surrounded by other children with similar experiences showed her that being “different” was something to understand and embrace. Grandview Kids also became a guide for her parents through the unknown, finding direction and reassurance in moments that once felt overwhelming. They learned how to advocate for Zoey, navigate difficult conversations and ensure she felt safe and supported in every environment. The ripple effect extended to Zoey’s older brother, Miles, now 14. Having attended many of her sessions, he absorbed the compassion modeled by Grandview Kids staff. At home, Miles became one of Zoey’s biggest supporters, encouraging and nurturing her in a protective way that shaped their bond.

Grateful for the support they received, Zoey’s family felt a strong desire to give back in any capacity they could. In 2016 and 2017, they became Run Ajax Ambassadors for Grandview Kids. Agreeing to be part of the Ambassador Program turned into a full community effort with a team of about 30 friends and extended family, including cousins and grandparents, rallying together. They fundraised, sold custom t-shirts, raised awareness and demonstrated the power of gratitude and community. Together, they raised thousands of dollars to support the very programs that helped Zoey grow.

Jessica and AJ are proud to share that Zoey is no longer just the child they once advocated for as she is becoming her own advocate. For a long time, talking about her diagnosis was not easy for her. Explaining what a stroke is or how cerebral palsy affects her felt intimidating. Over time, with reassurance from her family and the confidence she built through her experiences, Zoey found her voice. Now, when classmates or friends ask questions, she answers them in her own way and on her own terms. “My friend asked me a question about his mom, who also has cerebral palsy. He wanted to know how he could help her,” Zoey shares excitedly, recounting a recent opportunity for leadership and connection. Her parents remind her often that there is no right or wrong way to tell her story. “You know your body best. And when you’re ready, your voice can help others learn,” they encourage.

The journey has not been easy; Zoey has worked hard to lead a vibrant and full childhood. Her family has faced moments of misunderstanding, stares from strangers and uncomfortable questions like, “what’s wrong with her?” Through the guidance from Grandview Kids, they have learned how to manage expectations, respond and perhaps most importantly, how to educate and advocate – not just for Zoey – but for every child and youth to help build a more inclusive world.

Jessica and AJ encourage other parents to be their child’s voice until they find their own. “Every child deserves to be heard and respected. These conversations should start early, in classrooms and communities,” until they have trickled into the heart of every home.

Each month, the Inclusivity, Diversity, Equity and Accessibility (IDEA) Committee highlights dates of significance. These may include religious observances, clinical and medical awareness dates, important events or other significant moments within the community. See below for a broader list of additional dates of significance.

In May, we acknowledge Asian Heritage Month, Canadian Jewish Heritage Month, Vesak, Mental Health Awareness Week, National Day of Awareness for Missing and Murdered Indigenous Women and Girls, Mother’s Day, International Day Against Homophobia, Transphobia and Biphobia and World Cultural Diversity Day. Below, read more about each date of significance, written by members of our IDEA Committee.

Asian Heritage Month:

Celebrated since the 1990s, Asian Heritage Month is an opportunity to reflect on and celebrate the contributions and achievements of Canadians of Asian descent. During this month, we recognize the rich history of Asian Canadians, as well as the challenges many have faced.

In 2001, the Senate adopted a motion from Senator Vivienne Poy to officially designate May as Asian Heritage Month. This was her declaration:

“Diversity represents one of Canada’s greatest strengths, and we strive to ensure that all people in Canada have the opportunity to reach their full potential and participate in Canada’s civic life. Over the last two centuries, immigrants have journeyed to Canada from East Asia, Southern Asia, Western, Central and Southeast Asia, bringing our society a rich cultural heritage representing many languages, ethnicities and religious traditions. The people of these diverse, vibrant and growing communities have contributed to every aspect of life in Canada — from the arts and science to sport, business and government. Asian Heritage Month offers everyone in Canada an opportunity to learn more about the history of people of Asian origin in Canada and to celebrate their contributions to the growth and prosperity of our society. Thereby, we declare May as Asian Heritage Month in Canada.”

Each diverse and distinct community brings its own knowledge, skills and culture to the Canadian community. People of Asian origin have had an important impact on Canada’s history and identity since the 1700s, when 50 Chinese artisans helped build a Vancouver Island trading post. The Canadian Pacific Railway was built by 17,000 Chinese immigrants. This work was difficult and underpaid, and workers often experienced racism in many forms. The railway was, and remains, important to Canadian life as it allows both passengers and goods to be transported across the country.

Click here to learn more about key historical moments in Asian Canadian history.

Canadian Jewish Heritage Month

Canadian Jewish Heritage Month is observed each May to recognize and celebrate the contributions of Jewish Canadians to the country’s social, cultural, political and economic life. With the fourth-largest Jewish population in the world, the Government of Canada officially established Canadian Jewish Heritage Month in 2018.

This month highlights the rich history, traditions and achievements of Jewish communities across the country. It also serves as a time to reflect on the challenges Jewish Canadians have faced, including the fight against antisemitism and the preservation of cultural identity. Through educational events, cultural exhibitions and community celebrations, Canadian Jewish Heritage Month promotes awareness, understanding and appreciation of Jewish heritage and its role in shaping Canada’s diverse society.

Vesak: May 1

Vesak, observed on May 1, is a day marked by millions of Buddhists around the world. It recognizes the birth, enlightenment and passing of Gautama Buddha. It is a time to reflect on his teachings of compassion, peace and understanding.

Many communities observe the day with temple visits, candlelight ceremonies and acts of generosity. The day serves as a reminder that kindness and mindfulness can support greater harmony in daily life.

Vesak encourages individuals and communities to practise empathy, reduce harm and support one another. It is an opportunity to honour diversity, strengthen connections and reflect on how small acts of goodwill can create meaningful change. Through reflection, service and a commitment to peace, Vesak inspires people to help build a more compassionate world.

Mental Health Awareness Week: May 4 to 10

Stronger connections support better mental health.

Social connection is an important part of overall health and well-being, yet many people continue to feel isolated. From May 4 to 10, the Canadian Mental Health Association (CMHA) is inviting people across Canada to Come Together. The campaign encourages small, everyday actions that build connection and support mental health. Stronger connections help strengthen mental health.

Together, communities can support better mental health, build healthier environments and help more people feel connected. Small actions can help children, youth and adults feel seen, heard and supported, which can improve mental health and well-being.

Awareness of mental health matters. One-third of Ontario parents report a child missing school due to anxiety. One in five children will experience a mental health challenge, and 17 per cent of children with mental health challenges are between the ages of two and five.

A list of resources for information and support is available below:

Home – Children’s Mental Health Ontario
Durham Region -Crisis Lines – Helplines – Mental Health Services
Our Services | Canadian Mental Health Association Durham
988 Lifeline – If you need emotional support, reach out to the national mental health hotline: 988.
Kids Help Phone: 1-800-668-6868 or text CONNECT to 686868.
Check in on your Mental Health l CMHA National
Mental Health Resources l CMHA National
National Child and Youth Mental Health Resources

National Day of Awareness for Missing and Murdered Indigenous Women and Girls: May 5

The National Day of Awareness for Missing and Murdered Indigenous Women and Girls and Two-Spirit People, also known as Red Dress Day, is observed on May 5 in Canada.

The day raises awareness of the ongoing crisis of violence against Indigenous women, girls and Two-Spirit people. It is inspired by Métis artist Jaime Black’s REDress Project, which uses red dresses to represent those who are missing or have been murdered. On this day, we honour their lives and remember those who have been lost.

Missing and murdered Indigenous women and girls (MMIWG) remains a serious human rights issue in Canada, rooted in systemic racism, colonialism and gender-based violence. Indigenous women are affected by violence at a disproportionate rate. It is estimated that more than 4,000 women and girls have gone missing or been murdered.

On Red Dress Day, people are encouraged to wear red and take part in community events such as vigils, workshops and discussions to help raise awareness of the ongoing MMIWG crisis.

Mother’s Day: May 10

Mother’s Day is celebrated in Canada on the second Sunday in May, which falls on May 10, 2026 this year. It is a day to recognize and honour mothers, grandmothers, caregivers and mother figures for the love, care and support they give each day. It is also a time to reflect on the important role they play in families and in the Grandview Kids community.

This year, we recognize the many mothers and caregivers at Grandview Kids whose support helps children and youth grow, learn and reach their potential. Their patience, advocacy and encouragement are an important part of each child’s journey, and their impact is seen every day across our programs and services.

Mother’s Day has roots in early efforts to recognize mothers and promote peace. Today, it is marked in many ways, including cards, flowers, shared meals and time together. While celebrations look different for each family, the day is centred on gratitude and appreciation for those who provide care and support in children’s lives.

The International Day Against Homophobia, Transphobia and Biphobia: May 17

The International Day Against Homophobia, Transphobia and Biphobia, observed on May 17, highlights discrimination and violence faced by LGBTQIA+ people around the world. The date marks the World Health Organization’s 1990 decision to remove homosexuality from its list of mental disorders, a reminder that progress is possible when prejudice is challenged and human rights are defended.

The day encourages communities, allies and organizations to speak out against intolerance and to help create safer, more inclusive spaces for everyone. It is an opportunity to recognize diversity, challenge harmful stereotypes and support those whose voices are often silenced. Through empathy, education and solidarity, communities can help build a world where all people can live openly, authentically and without fear.

World Cultural Diversity Day: May 21

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At Grandview Kids, diversity is recognized and celebrated every day.

Our community is strengthened by the cultures, perspectives and experiences that each child, family and team member brings. By embracing inclusion and learning from one another, we create spaces where everyone feels seen, heard and valued.

On May 21, World Day for Cultural Diversity for Dialogue and Development, we recognize the importance of acceptance, understanding and belonging for every child and family.

We continue to learn, listen and grow together.

Other dates of significance in May:

Pediatric Stroke Awareness Month
Neurofibromatosis Awareness Month
Speech, Language and Hearing Month
Vision Health Month
Williams Syndrome Awareness Month
Childhood Stroke Day: May 3
GBA Plus Awareness Week May 4 to 8
Cinco de Mayo: May 5
Moyamoya Awareness Day: May 6
National Child & Youth Mental Health Day: May 7
World Lupus Day: May 10
Apraxia Awareness Day: May 14
International Day of Families: May 15
Neurofibromatosis Awareness Day: May 17
Victoria Day: May 18
Global Accessibility Awareness Day: May 21
Shavuot: May 22
National Brother’s Day: May 24
National Accessibility Week (May 24 to 30)

When 15-year-old S walks into a room, she radiates light. People naturally gravitate towards her. They are drawn to her social, expressive energy. She loves music, singing, dancing and thrives on connection. She is happiest when she feels included and known. She always strives to bring her family together, whether through bowling nights, shared meals, playing Wii or watching movies. She really enjoys singing with her dad.

S has a sharp memory and sings in multiple languages (at least nine), including English, Spanish, Urdu, Arabic, Swahili and Afrikaans and has memorized the lyrics to hundreds, if not thousands, of songs across multiple genres. She values routine and predictability and can be unsettled by loud, unpredictable noises or sudden changes, but within her comfort zone, she flourishes.

As a newborn, S was under birth weight and later diagnosed at The Hospital for Sick Children (SickKids) with failure to thrive during infancy. She struggled with feeding, sleep and growth. She suffered from extreme colic, uncontrollable crying and sensory processing. S’s mother, Sharon, consulted with a paediatric nutritionist to help improve her symptoms and was then referred to a naturopathic doctor when things did not improve. Through a food sensitivities test, it was discovered that she had a leaky gut and had developed severe sensitivities to certain foods, despite being on a gluten and dairy-free diet.

In 2012, at just two years old, S was referred to Grandview Kids by her family doctor as she was failing to meet her developmental milestones. Upon assessment, a medical team was established, which included a developmental paediatrician, speech-language pathologist (SLP), occupational therapist (OT) and physiotherapist (PT). Little did she know that this was the beginning of her lifelong journey at Grandview Kids.

Initially diagnosed with global developmental delay, S was referred to Lakeridge Health for genetic testing to determine the underlying cause. S was diagnosed with Williams Syndrome (WS), a rare genetic condition affecting approximately 1 in 10,000 people. Caused by a random partial deletion on chromosome 7, which includes the elastin gene, the marker gene for a WS diagnosis.

Those with WS are characterized by similar facial characteristics and an array of medical problems, including cardiovascular disease, gastrointestinal (GI) issues, developmental delays and learning challenges, which S also experiences. Despite these health challenges, they are also known for their friendly, highly empathic qualities, which are part of S’s charming personality. In particular, she has speech and language challenges, decreased cognitive and physical abilities, and sensitivities to loud, unpredictable sounds such as thunderstorms, fire alarms, dogs barking and people laughing or coughing. Her heart is regularly screened by a pediatric cardiologist due to early detection of a heart murmur. Those with WS are prone to cardiovascular narrowing of the arteries and heart attacks.

The diagnosis brought mixed emotions of fear, relief and disbelief all at once. Her parents suspected something was not right, especially as the youngest child of three, but did not yet have the language or roadmap to understand what lay ahead. Sharon was plagued by guilt, thinking it was something she had done. Learning that this random deletion in their daughter’s chromosomes occurred at the time of conception and not by anything they did before or during pregnancy was the first step in a long journey ahead.

What made it harder was the condition’s rarity. It is difficult for people with WS to access dedicated resources, support for treatment, continuity of care or find medical professionals with experience in WS. While in the U.S., those with WS have access to established clinics and conferences, Sharon and her family often felt like they were navigating uncharted territory at home. Still, even in those early days, one thing was clear: S loved music. A simple music box could calm her, distract her enough to eat and bring her joy. Music became a bridge, a way she could connect with the world.

Over the years, S’s Grandview Kids services also expanded to therapeutic recreation, audiology, social work, the orthopaedic clinic, optometry and, most recently, the Adolescent Transition Program. From 2014-2016, Sharon attended monthly Parent Support Group meetings on Saturdays to connect with other families facing similar challenges of raising a child with disabilities.

For Sharon, Grandview Kids quickly became more than a therapy centre. “Grandview Kids became our home away from home,” said Sharon. “It’s the one place where I never had to explain my child or justify her needs. I could just let my guard down and be a mom.”

In other community spaces, Sharon often felt pressured to explain, justify or defend her child’s needs. At Grandview Kids, that pressure disappeared. Parents sat together in waiting rooms without labels or explanations, just shared understanding. No one asked why a child behaved a certain way, and no one judged, so guards came down.

Once S aged out of the Grandview Kids services and entered the school system, she continued to receive school-based rehabilitation services (SBRS). Sharon shares that over the years she has learned to be S’s voice, advocating for her, especially during COVID-19 lockdowns, when she assumed the unofficial title of “educational assistant.” As a social butterfly, she found that those years of isolation and social distancing had a profound effect on her personality, and returning to the physical classroom was a slow adjustment.

Since then, S has learned to find her own voice with Grandview Kids by her side and with mom as her lead example. She is thriving in new ways, enjoying high school and has grown tremendously since overcoming early communication barriers. With advocacy support from her parents and speech therapist, her teachers learned how to better understand and support her. She is now in a practical learning program (PLP) classroom and beginning to develop self-advocacy skills. While transitions can still be hard and loud environments overwhelming, she is confident in who she is and that confidence has been nurtured by her community.

Equally important are caregiver supports through the Family Engagement (FE) Program’s weekly park playdates, parent and youth social nights, monthly coffee chats, summer days at the Barrett Centre rural farm and outings to the pumpkin patch. These moments allow families to build confidence, clarity and connection. One of the most meaningful parts of S’s journey has been the Adolescent Transition Program (ATP), where she met Peer Navigator April W., who has become like extended family.

“April has a big heart and specialized training and combines that with her lived experience to help support other families navigate their journey,” Sharon notes.

ATP was co-designed by parent and youth advocates and various members of Team Grandview. ATP puts the family voice at the centre of program development. The program is supported by a grant from TD Bank and pioneered by FE Program Manager, Andrea B. She brings both the parent/caregiver and peer lived experience to provide support and resources to families when clients transition from paediatric to adult care. Sharon also attended ATP workshops that share vital information on funding, guardianship and post-secondary education.

Since being part of ATP, when S hears “Grandview,” she thinks of the amazing friendships she has fostered and the fun dance parties that she gets to attend. The enthusiasm is spilling into other areas of her life, including therapy and school. Sharon sees the excitement in S’s eyes and the joy bubbles and overflows.

To Grandview Kids families who feel hesitant or unsure about making connections with others, Sharon offers simple advice,

“If you’re hesitant, just come. You don’t know what you’re missing. You’ll learn, you’ll connect and you’ll realize you’re not alone.”

Living with a child with physical, communication or developmental needs comes with uncertainty, but it also comes with extraordinary joy, resilience and connection. S reminds everyone she meets that difference is not something to fix, but something to understand, support and celebrate. At Grandview Kids, S receives services, but she’s also dancing, connecting and shining exactly as she should.

In April, we acknowledge Passover, International Children’s Book Day, Easter Sunday, Vaisakhi, Wolf Hirschhorn Syndrome Awareness Day and Ridvan. Below, read more about each date of significance, written by members of our IDEA Committee.

Passover: April 2 to 9

Passover is one of the most widely celebrated Jewish holidays. It is rich with history, symbolism and tradition. It is typically observed with a ritual meal on the evening before Passover begins, known as a seder, accompanied by traditional foods including matzah, beitzah and chazeret, along with kosher wine, and the retelling of the story of Exodus.

During Passover, many people avoid eating chametz, or leavened grain, including foods made with wheat, barley, rye and oats. This means avoiding bread, cake, cereal, pasta and most alcoholic beverages. This practice reflects the Israelites’ departure from Egypt, when they left so quickly they did not have time to bake their bread. Instead, the dough baked in the heat of the sun as they travelled, forming a flat, cracker-like food.

When greeting those who celebrate Passover, it is appropriate to say “Happy Passover” or “Chag Sameach,” a Hebrew phrase meaning “happy holiday.”

International Children’s Book Day: April 2

International Children’s Book Day is celebrated on April 2, Hans Christian Andersen’s birthday. Andersen wrote many classic fairy tales, including The Little Mermaid, The Princess and the Pea and The Ugly Duckling. His contributions to literature have inspired generations of children to read and imagine new worlds.

This day focuses on inspiring a love of reading in children and draws attention to the importance of children’s literature. According to the Government of Canada, reading to children and exposure to books can contribute to higher self-esteem and increased use of imagination, as well as support children’s developing language and social-emotional skills.

Libraries are key to helping children access books. Durham Region has libraries in many municipalities where you can find new books, enjoy a cozy space to read or borrow books to read at home. Beyond physical access, it is important that materials are accessible for all abilities. For example, the Ajax Library offers audiobooks, large-print books, C-Pens, multilingual books and DAISY readers. These support engagement with literature for people who are blind or have low vision, are dyslexic or speak different languages. Connect with your local library to learn more about the accessible options available.

Here are some ways you can celebrate at home with your family!

Visit your local library and borrow a book
Read your favourite book again
Act out a story with funny voices
Listen to an audiobook while you drive
Write your own story and draw pictures to go with it

Easter Sunday: April 5

Easter, also known as Pasch or Pascha, is a Christian holiday and cultural celebration observed on Easter Sunday that commemorates the resurrection of Jesus Christ from the dead. According to the New Testament of the Bible, this event occurred on the third day after his crucifixion by the Romans at Calvary, around 30 AD.

Easter Sunday marks the culmination of the Passion of Jesus, a series of events that includes his suffering, crucifixion and resurrection. It is preceded by Lent, a 40-day period devoted to fasting, prayer and penance, during which many Christians reflect, give to others and prepare spiritually for Easter.

Easter is also associated with a range of cultural traditions and gatherings, including special church services, festive meals and community celebrations. For many, it is a time of renewal, hope and coming together with family and loved ones.

Vaisakhi: April 14

March 14 marks Vaisakhi, a festival celebrated by Sikhs worldwide that commemorates the birth of the Khalsa in 1699. This day holds deep religious significance, marking Guru Gobind Singh’s creation of the Khalsa, a collective body of initiated Sikhs committed to equality, service and faith. Vaisakhi also coincides with the start of the harvest season in Punjab, India, and is celebrated with great enthusiasm across the region.

On Vaisakhi, Sikhs gather for prayers, processions and community events at gurdwaras. Celebrations often include the singing of hymns, readings from the Guru Granth Sahib and the sharing of langar, a free community meal open to all. Nagar kirtan processions, featuring music and displays of martial arts, are also an important part of the day in many communities.

Vaisakhi is a time for the renewal of faith, reflection and celebration. It highlights the values of unity, generosity and service, while honouring the rich cultural and spiritual traditions of the Sikh community.

Wolf-Hirschhorn Syndrome Awareness Day: April 16

Wolf-Hirschhorn Syndrome Awareness Day, also known as 4p- Awareness Day, takes place each year on April 16 to advocate for those affected by this rare and complex genetic disorder.

Wolf-Hirschhorn syndrome affects an estimated one in 50,000 births. Individuals who are affected have a deletion on chromosome 4, resulting in a variety of symptoms, including slow growth, developmental delays, cardiac issues, distinct facial features, cleft lip or palate, a small head (microcephaly), seizures and more. Each individual’s symptoms can vary depending on the location and size of the missing chromosome.

April 16 aims to raise awareness and support, emphasize the need for early intervention and advocate for increased medical supports. You can show your support for Wolf-Hirschhorn Syndrome Awareness Day by wearing jeans. Some supporters may wear jeans with holes to represent the missing chromosome. For more information, visit the 4p-Support Group (North America).

Ridvan: April 21 to May 2

Ridvan is one of the most important celebrations in the Bahá’í Faith. It commemorates the twelve-day period in 1863 when Bahá’u’lláh declared his mission as the messenger of God while in Baghdad. Observed each year from April 21 to May 2, Ridvan is often called the “Most Great Festival” in the Bahá’í calendar.

The first, ninth and twelfth days of Ridvan are considered especially holy and are observed with prayer, reflection and suspension of work for adherents. The festival symbolizes spiritual renewal, the public declaration of faith and the joy of unity within the Bahá’í community. Across the world, Bahá’ís come together during Ridvan for gatherings at local centres, where they share prayers, readings from sacred texts and community celebrations. It is a time to strengthen bonds, reflect on core teachings and celebrate the principles of equality, peace and service that underpin the Bahá’í Faith.

Other dates of significance in April:

Autism Awareness & Acceptance Month
Limb Loss Awareness Month
Deaf History Month
Sikh Heritage Month
World Autism Day: April 2
Hanuman Jayanti: April 2
Good Friday: April 3
Easter Monday: April 6
International Asexuality Day: April 6
World Health Day: April 7
National Caregiver Day: April 7
National Siblings Day: April 10
International Day of Pink: April 12
Tamil New Year: April 14
National Volunteer Week: April 19 to 25
Earth Day: April 22
World Day for Safety and Health at Work: April 28

Elysha, a teacher, and Tyrone, an electrician, are the parents of Adaline (7) and her younger sister, MaKinleigh (3). They built a life that is busy, loud and full of movement, just the way their daughter Adaline likes it. Between outdoor adventures, time at the park, weekends at their cottage and their new trailer, the family is always on the go. Adaline thrives in that energy, seeking out stimulation and excitement, sometimes in ways that keep her parents on their toes!

Adaline is a thrill-seeker with no fear. She loves swimming, spinning chairs, loud noises and anything fast, especially Sea-Doos, snowmobiles and even the lawn tractor. Her personality is unmistakably spicy, determined and full of joy. Adaline communicates in her own ways through her expressive eyes, cheeky smile and a signature eyebrow raise that signals either excitement or a bit of mischief. She is clever and bright, and above all, incredibly tenacious. She continues to push past the expectations set for her.

Adaline was one month old when she was diagnosed with Wolf-Hirschhorn Syndrome (WHS), a rare genetic disorder caused by a deletion on chromosome 4. Even within her first week of life, doctors had their suspicions as she was born very small. She was only 3 pounds 13 ounces at nearly 37 weeks gestation, and had difficulty feeding. Subtle physical indicators, including slightly wider-set eyes, small skin growths near her ears and indentations around her shoulders and face, raised concern. She also experienced brain bleeds, adding to the complexity of her early medical picture. Elysha and Tyrone agreed to genetic testing and were told to expect a diagnosis with much milder effects, but when the results arrived, they felt blindsided.

Adaline’s WHS diagnosis came on the very day they were preparing to leave the hospital’s neonatal intensive care unit (NICU), completely changing their path forward. They grieved the life they had imagined, feeling fear and deep uncertainty about the future. For many children with WHS, challenges can include developmental delays, feeding difficulties, seizures, heart defects and hearing, vision, immune and muscle tone differences. Each child’s experience with WHS is unique.

Adaline’s early years were medically intense. She spent 28 days in the NICU and had repeated hospitalizations. For the first year and a half, the hospital became a second home. Feeding was one of the biggest struggles as she required a nasogastric (NG) tube and vomited frequently due to a submucosal cleft palate. Shortly after Adaline came home from the NICU, Tyrone and Elysha were set to be married in May of 2019. At the time she was combo feeding with bottles and through the NG tube. “We really wanted to see Adaline’s beautiful face without the NG tube in our wedding photos as the tape from her NG covered half of her face. Her paediatrician said we could remove it for a few days and put it back in after the wedding.” Adaline had done well without the tubes and continued to maintain her weight that a few days after their wedding, their paediatrician approved the complete removal of the NG tube. She was monitored across multiple specialties, including cardiology, immunology, ear, nose, and throat (ENT) and ophthalmology. Her immune system was fragile, requiring the family to live in a small, protective bubble. The risk of seizures loomed constantly. It was not a question of if she would begin having them, but when. At 15 months old, that fear became reality.

Adaline’s seizures were severe and often triggered by illness or low oxygen levels, caused by choking and aspirating. Most episodes required hospitalization and emergency interventions, like intubation. These moments were terrifying and, at times, traumatic. Over time, Elysha and Tyrone learned not only how to respond but also how to guide medical professionals unfamiliar with Adaline’s rare condition. Since WHS presents differently in every child, they became her experts, voice and advocates.

Today, Adaline’s seizures are better controlled with the help of seizure medication and parental vigilance. Her last major one was in February 2025, and for the first time, it did not require a hospital stay. It was a milestone that reflected years of persistence, learning and advocacy.

Despite everything, Adaline continues to defy expectations. Skills that specialists once thought unlikely, she has achieved through sheer determination. From the very beginning, Grandview Kids became a cornerstone of support for Adaline and her family. Referred shortly after leaving the hospital, she began services at three months old.

At Grandview Kids, the family accessed coordinated care including developmental paediatrics, physiotherapy, occupational therapy, speech-language pathology, therapeutic recreation, nutrition and social work services. Blocks of therapy taught Elysha and Tyrone essential early intervention strategies to guide Adaline’s progress and even led her to independent walking, something that was once considered impossible.

During her most fragile years, Adaline’s family was part of Grandview Kids’ Complex Care Program. This coordinated care team of Adaline’s specialists from Grandview Kids, The Hospital for Sick Children (SickKids), Lakeridge Health and the Ontario Health at Home, Central East, was impactful. This team understood Adaline as a whole child. When her seizures were severe, the team helped fast-track interventions and ensured seamless communication between specialists. They became a central hub for her care.

The community they experienced at Grandview Kids was also profound. At Grandview Kids, Elysha and Tyrone connected with many other families, forming strong friendships and a shared understanding. Grandview Kids Summer Camp and Family Engagement Program events gave Adaline space to discover and belong. Adaline was also fortunate to attend Grandview School to prepare the family for her transition to the mainstream school system. The gratitude Elysha and Tyrone have for the Grandview Kids community they formed is immeasurable.

Today, Adaline’s biggest challenge is communication. She is considered pre-verbal, with a handful of spoken words and some gestures. While her receptive language is strong, understanding much of what is said to her, expressing herself can be frustrating. This gap often shows up in her behaviour. Without a reliable way to communicate her needs, emotions can escalate quickly. Her family continues to explore tools like augmentative and alternative communication (AAC) devices, though attention, vision and motor challenges add complexity.

Transitions, like starting mainstream school this year, have also been difficult. Everyday activities, like eating, still require patience and creativity. Through it all, Adaline continues to grow on her own timeline. Elysha and Tyrone’s journey has taught them lessons they now share openly with other families.

Elysha and Tyrone’s lessons:

Don’t compare.
Comparison is the thief of joy. Every child, diagnosis or not, has their own path. Adaline’s journey cannot be measured against anyone else’s, not even her sister’s.

Be patient and take it day by day.
At first, thinking too far ahead felt impossible. Focusing on the present day-to-day steps, made it manageable.

Celebrate the “inchstones.”
Every victory matters. What may seem minor to others can be monumental for your child.

Advocate fiercely.
You will become the expert on your child. Ask questions, speak up and challenge kindly when needed. Doctors do not have all the answers, especially with rare conditions. They are also learning with and from you.

Find your community.
Whether it is through support groups, organizations like Grandview Kids or other families with different diagnoses but shared lived experiences, connection matters. You are not alone.

Don’t lose sight of joy.
Life may look different. It may involve more planning, equipment and confusion, but it can still be full of fun, laughter and meaningful moments.

Though the future remains uncertain, what has changed is how Elysha and Tyrone face that uncertainty. They now have resilience, community and shared understanding that Adaline will continue to surprise them. If there is one thing Adaline has shown from the start, it is that she is writing her own story.

Jack is three years old and always on the move. He always chooses to run instead of walk and breaks out into dance whenever he hears music playing. Monster trucks and cars are his greatest passions because of their spinning wheels, and Halloween is his favourite time of year. He loves sports, particularly football, and his greatest joys are playing catch with his dad and bouncing endlessly at a trampoline park. Jack is silly, affectionate and determined to connect with the people he loves, even when communication is hard.

Jack lives with his mom, Jess, his dad, Jake, and his six-month-old baby sister, Ava. As a family, they value time together the most. They play sports in the yard, go on long walks when the weather is nice, ride bikes and find simple joy in being together. Although life with Jack is active, loud and full of laughter, it also requires resilience, patience and advocacy.

Jack’s journey began when he was born one month premature and needed to be resuscitated at birth because he wasn’t breathing. He spent his first week in the hospital’s Neonatal Intensive Care Unit (NICU), requiring the use of continuous positive airway pressure (CPAP) due to breathing difficulties caused by fluid in his lungs. After being discharged, Jack was readmitted to hospital for jaundice and difficulty in gaining weight. Breathing issues continued throughout his first year, along with feeding challenges that made eating exhausting and stressful. Frequent medical appointments, a tongue-tie release and ongoing private speech therapy became part of his early routine.

Despite these challenges, Jack was otherwise a healthy baby. At one year old, developmental concerns became more apparent. He wasn’t crawling, his speech was significantly delayed and he was behind on several developmental milestones. Jess, a social worker and psychotherapist, trusted her instincts that something deeper was going on, but advocating for her own child proved harder than expected. Two paediatricians dismissed concerns about autism spectrum disorder (ASD), suggesting Jack would catch up in time.

Jess and Jake persisted. They knew their child, and they knew his needs were not being fully recognized. Their persistence paid off when Jack was finally referred to a developmental paediatrician at Grandview Kids. In August 2025, Jack received his ASD diagnosis with communication delays and language impairment. For his parents, the diagnosis was not devastating but, instead, validating. Suddenly, Jack’s experiences, behaviours and challenges made sense and the focus shifted from questioning to supporting.

Before his diagnosis, communication was one of Jack’s biggest barriers. He wanted to be understood but struggled to express himself clearly. When his parents could not figure out what he needed, frustration would build quickly, sometimes leading to throwing objects, intense emotional reactions and meltdowns. These moments signalled a child who was overwhelmed and unable to communicate.

Through care at Grandview Kids, Jack’s world began to open. Visual supports were introduced throughout the home, including picture boards for food, toys and familiar people, choice boards to help make decisions and visual schedules that guided Jack’s understanding of what was happening next. These tools made Jack less anxious, improved his transitions between activities and gave him a sense of control over his day. Speech-language pathology sessions focused on his motor speech planning challenges, while a referral to Holland Bloorview was made to explore an augmentative and alternative communication (AAC) device, giving Jack another powerful way to express himself.

Jack also began receiving occupational therapy (OT) and physiotherapy (PT) at Grandview Kids. OT became essential in supporting Jack’s sensory needs. Jack has a lot of energy and finds it hard to slow his body down, especially at night. Bedtime routines can last hours as his nervous system struggles to settle. Sensory sensitivities also impact his eating, making him selective with food textures. OT strategies, including heavy work and deep pressure, have helped Jack regulate his body and emotions, making daily life more manageable for the whole family. PT supported Jack’s physical development, building confidence with balance, stairs and jumping. These skills now allow him to fully enjoy sports and active play. Each small gain felt like a big victory.

More than the therapies themselves, what made the greatest difference to Jess and Jake was feeling seen. The clinicians at Grandview Kids listened, believed the family and validated Jess’ intuition. For the first time, the family felt reassured that they were not alone and that Jack’s future could be full of possibilities.

Today, Jack continues to grow and thrive in his own unique way. He still loves monster trucks, dances without hesitation and continues to bring joy wherever he goes. He experiences challenges but does so with great resilience.

Jack’s story is a reminder that early support matters, parental instincts deserve to be trusted and that acceptance begins with understanding. Jack is not defined by his diagnosis. He is defined by his joy, his determination and the community of people who see him for exactly who he is and celebrate him just as he is.