Awareness Days

Grandview Kids has been part of Brad’s story from the very beginning

Diagnosed with cerebral palsy at just six months old, Brad was referred to Grandview Kids, where he received physiotherapy, occupational therapy and rehabilitation support after two major surgeries. He attended Grandview School and, over the years, built strong relationships with the people who helped him navigate challenges and celebrate milestones. One of his proudest childhood memories is taking his first steps at the old Grandview Kids building in Oshawa when he was seven years old.

Brad’s connection to Grandview Kids continued to evolve. He became a Grandview Ambassador in 2001, volunteering throughout high school and later partnering with Grandview Kids leaders to raise funds through community speaking engagements. They shared the importance of giving both clients and caregivers a platform to voice their needs, concerns and goals.

Together with Andrea B. (our Family Engagement Program Manager), they helped create the Grandview Kids Family Engagement Program. This small but mighty team of two has now grown to a team of 13 staff, comprised of caregivers to Grandview clients, former clients (grads) and siblings. Brad is proud to be an employee of Grandview Kids, where he has spent the past eight years supporting youth and families as a Peer Navigator and Youth Advisory Council (YAC) leader. He also sits on the Grandview School Board as the YAC Representative, helping bring forward matters and perspectives that are important to youth.

Brad is quick to point out that he has never accomplished any of this alone. Supported by a close-knit family, including his twin brother, and surrounded by people who believe in him, he says Grandview Kids became a village that helped him reach where he is today. National Disability Independence Day is a celebration of progress, inclusion and opportunity.

For Brad, disability independence means having the choices and opportunities to support himself while contributing to his community. It also means turning hardships into opportunities and using his experiences to encourage others. “If they see me do it,” he says, “it proves to them that anything is possible.”

Brad credits Grandview Kids with helping him build the confidence and independence that shaped his career. Through therapy, rehabilitation and the encouragement of staff, he learned the importance of self-advocacy and perseverance. More importantly, he learned to celebrate small victories. “Our clients and families go through so much every day,” he says. “It isn’t always about the big celebrations.”

Brad believes every child and youth has a unique purpose and place in the world. One of the most important lessons he’s learned over his years at Grandview Kids, and he now shares with youth, is that everyone has strengths worth discovering.

He sees his role as guiding youth to identify their strengths, develop confidence and find pathways to reach their full potential. The work is vital because barriers still exist. Brad believes many children and youth with physical, communication and developmental needs continue to face accessibility challenges in their communities, whether that means navigating public spaces, attending events or accessing services.

Employment also remains one of the biggest obstacles for youth with physical, communication and developmental needs. Too often, young people are told they are not the right fit for a job, and those experiences can diminish confidence and self-worth.

That is why Brad is passionate about helping youth find their voice. He wants them to feel supported, included and empowered to advocate for themselves. Sometimes, simply knowing someone is on their team can make all the difference. For young people wondering what their future might hold, Brad offers a message of hope.

“Believe in yourself, do your best and surround yourself with good people,” he says. “Turn your disability into something positive and spread positivity. Kindness is free,” Brad encourages. He wants youth to know they are not alone. Whether as a mentor, advocate or friend, Brad is committed to helping others navigate their own journeys toward independence.

When asked what achievement makes him most proud, Brad does not focus on a single accomplishment. Instead, he reflects on the opportunity to spend his career helping others. “I can do anything I set my mind to, but this is what I want,” he says. “I’m living out my dream helping kids, youth and their families understand that anything is literally possible.” Brad’s dream is rooted in gratitude for the people who supported him, the opportunities he received and the chance to give back.

His journey from client to Team Grandview member is a powerful reminder that independence is not about doing everything alone. It is about having the support, opportunities and confidence to pursue your goals, advocate for yourself and help others do the same. “Grandview will always have my heart,” says Brad.

June 28 marks International Pride Day, a time to honour and celebrate members of the 2SLGBTQIA+ community and reflect on the ongoing work toward equality, inclusion and acceptance.

Here are some resources for talking with your child or youth about gender identity:

Books shared for open conversations:

Check out your local library or Ajax Public Library branches for physical and digital copies, with pick-up available at the Ajax Public Library – Grandview Kids Express Branch.

My Princess Boy by Cheryl Kilodavis
The Awesome Autistic Guide for Trans Teens by Enn Purkis and Sam Rose
My Shadow is Pink by Scott Stuart
My Shadow is Blue by Scott Stuart
My Shadow is Purple by Scott Stuart

Online resources:

Each month, the Inclusivity, Diversity, Equity and Accessibility (IDEA) Committee highlights dates of significance. These may include religious observances, clinical and medical awareness dates, important events or other significant moments within the community. See below for a broader list of additional dates of significance.

In June, we acknowledge Pride Month, National Indigenous Heritage Month, Father’s Day, National Post-Traumatic Stress Disorder Awareness Day and Canadian Multiculturalism Day. Below, read more about each date of significance, written by members of our IDEA Committee.

Pride Month

June is Pride Month. Canada has a rich queer history, and the month is a time to celebrate the 2SLGBTQIA+ community, reflect on the past and look toward the future.

Across the country, events, parties and celebrations take place for people of all ages. Some of the largest are Pride parades, with Toronto Pride among the biggest in the world. While these celebrations are a joyful part of Pride Month, they are rooted in the grassroots activism and advocacy of the past.

In the United States, the Stonewall riots in June 1969 followed a police raid on a bar that served gay, lesbian, transgender and queer patrons. The raid sparked six days of protests and is widely seen as a catalyst for the modern LGBTQ+ rights movement.

In Canada, the first major gay rights protest took place in 1971, when more than 100 people marched on Parliament Hill to present a list of 10 demands for equal rights. Since then, there have been many milestones in the advancement of LGBTQ+ rights in Canada.

Click here to learn more about the history of Canadian Pride!

National Indigenous History Month

June is National Indigenous History Month, when all Canadians, Indigenous, non-Indigenous and newcomers, recognize and celebrate the distinct cultures and contributions of First Nations, Inuit and Métis peoples to the fabric of Canada. The month also highlights the importance of preserving Indigenous cultures, traditions, languages and spirituality, as well as the resilience shown in the face of historical injustices.

It is also a time for reflection on the historical and ongoing impacts of the residential school system, which operated from the late 1800s until 1997, when the last school closed. An estimated 150,000 Indigenous children were removed from their families, forced to abandon their identities and taught they were inferior to European culture.

Policies such as the Indian Act contributed to the segregation and assimilation of Indigenous peoples by removing them from their lands, placing them on reserves or settlements and restricting cultural practices, including language and spirituality.

During National Indigenous History Month, all Canadians are encouraged to learn, reflect and celebrate the diverse cultures of Indigenous peoples.

Father’s Day: June 21

Father’s Day originated in the United States in the 20th century. The first observance took place in Spokane, Washington, in 1910, when Sonora Smart Dodd created a day to honour her widowed father, who raised six children on his own.

Inspired by Mother’s Day, the tradition spread globally to recognize fathers and father figures.

How Canadians celebrate

Although not a statutory holiday, Father’s Day is observed in Canada on the third Sunday in June each year (June 21, 2026). It is a time to recognize fathers and father figures in many ways.

Celebrations may include participating in charity events such as Father’s Day fun runs in support of men’s health or prostate cancer research, watching sports together, or giving gifts such as handmade crafts, clothing, gadgets, gift cards, chocolates, books or items related to personal hobbies.

Families may also share meals, from homemade breakfasts or brunches to restaurant dinners or backyard barbecues. Cards, whether handmade or purchased, are often shared to express gratitude and appreciation. When families are apart, video calls, e-cards and messages help maintain connection.

Recognizing great dads

Father’s Day is also an opportunity to recognize any positive father figure. A simple message, text or card can help someone feel appreciated and valued on the day.

National Post-Traumatic Stress Disorder Awareness Day: June 27

The month of June marks National Post-Traumatic Stress Disorder (PTSD) Awareness Month and June 27 marks PTSD Awareness Day. It is a time to raise awareness, foster understanding and challenge the stigma surrounding PTSD.

In Canada, 5 percent of people reported receiving a PTSD diagnosis from a health-care professional. However, according to Statistics Canada’s 2021 Survey on Mental Health and Stressful Events, 8 percent of Canadians met the criteria for probable PTSD based on symptoms experienced in the previous month.

While probable PTSD is not a formal medical diagnosis, these findings highlight the widespread impact of PTSD symptoms across Canada and suggest many individuals may be living with undiagnosed PTSD. These symptoms can significantly affect overall well-being and quality of life, underscoring the importance of accessible mental health care and support services.

Canadian Multiculturalism Day: June 27

June 27 marks the 24th anniversary of Canadian Multiculturalism Day. Established in 2002, the day highlights the contributions of Canada’s more than 450 ethnic and cultural groups to the mosaic that makes this country home. Following Canada’s official adoption of multiculturalism in 1988, the first country in the world to do so, Canada has continued to grow through the contributions of people from around the world. The day also recognizes the historical efforts of these communities in helping the country progress.

Celebrate Canadian Multiculturalism Day by recognizing your cultural heritage, learning about your neighbours’ or participating in one of the many celebrations across Canada. View the interactive map below to find an event near you.

Other dates of significance in June:

Brain Injury Awareness Month
Spina Bifida Awareness Month
Stroke Awareness Month
Scoliosis Awareness Month
Italian Heritage Month
Filipino Heritage Month
Portuguese Heritage Month
Red Shirt Day – for National Accessibility Day: June 3
National Cancer Survivors’ Day: June 7
World Blood Donor Day: June 14
CDKL5 Awareness Day: June 17
Autistic Pride Day: June 18
National Indigenous Peoples Day: June 21
Dravet Syndrome Awareness Day: June 23
Nativity of St. John the Baptist: June 24
International Pride Day: June 28
Arthrogryposis Awareness Day: June 30

Celebrating Stroke Awareness Month!

Zoey’s story began with two silent strokes before she was even born. These strokes in utero would lead to a diagnosis of right-sided hemiplegia cerebral palsy at 18-months-old. While cerebral palsy is part of her life, it does not limit 11-year-old Zoey. Today, she plays pickleball and basketball without hesitation, fills sketchbooks with art, bakes in the kitchen and laughs with her siblings, Miles and Quinn. Zoey’s parents, Jessica and AJ, prioritize family time, whether that means a visit to the zoo, watching cooking shows, playing UNO or Snakes and Ladders, or simply sitting together in the living room for movie nights. Their dog, Oreo, is never far behind and extended relatives, including great-grandparents, are part of her strong circle of support. Zoey’s journey is not defined by what happened to her, but by everything she has done since.

As a toddler, Zoey’s parents noticed that she was not hitting age-appropriate milestones and seemed to favour only the left side of her body. Her right hand often stayed in a fist, her toes curled under and she did not seem aware of her right side. “It was like she didn’t realize she had a right hand at the time,” they shared with their paediatrician while raising their concerns. That led them to testing at SickKids Hospital, where an MRI revealed that Zoey had experienced two strokes before birth. Like many parents receiving a new diagnosis, Jessica and AJ were left wondering what this would mean for Zoey’s future, independence and everyday life.

The diagnosis brought both uncertainty and the supports they needed. A referral was made to Grandview Kids, a place that would become much more than a therapy provider for Zoey’s family.

Zoey began physiotherapy, occupational therapy and participated in social work groups at Grandview Kids. Beyond the excellent clinical care, the welcoming, warm and “full of life” environment at Grandview Kids stood out immediately. Kids were not being called in for “appointments,” rather they were being invited to play. Therapies were play-based with goals set around what Zoey enjoyed, and because of this, Zoey thrived.

With the support of her care team, she worked on strengthening her right side. She wore an ankle-foot orthotic (AFO) on her right leg and used arm splints to encourage both hands to work together. “Grandview helped me use my right hand a lot,” Zoey says. “And they helped me learn how to walk up the stairs.” As a toddler, she relied on the use of a walker but with determination, grit and encouragement, she progressed. Today, she runs onto a soccer field without supports.

To Jessica and AJ’s surprise, the impact went far beyond physical development. Grandview Kids helped build Zoey’s confidence, resilience and her sense of belonging. Being surrounded by other children with similar experiences showed her that being “different” was something to understand and embrace. Grandview Kids also became a guide for her parents through the unknown, finding direction and reassurance in moments that once felt overwhelming. They learned how to advocate for Zoey, navigate difficult conversations and ensure she felt safe and supported in every environment. The ripple effect extended to Zoey’s older brother, Miles, now 14. Having attended many of her sessions, he absorbed the compassion modeled by Grandview Kids staff. At home, Miles became one of Zoey’s biggest supporters, encouraging and nurturing her in a protective way that shaped their bond.

Grateful for the support they received, Zoey’s family felt a strong desire to give back in any capacity they could. In 2016 and 2017, they became Run Ajax Ambassadors for Grandview Kids. Agreeing to be part of the Ambassador Program turned into a full community effort with a team of about 30 friends and extended family, including cousins and grandparents, rallying together. They fundraised, sold custom t-shirts, raised awareness and demonstrated the power of gratitude and community. Together, they raised thousands of dollars to support the very programs that helped Zoey grow.

Jessica and AJ are proud to share that Zoey is no longer just the child they once advocated for as she is becoming her own advocate. For a long time, talking about her diagnosis was not easy for her. Explaining what a stroke is or how cerebral palsy affects her felt intimidating. Over time, with reassurance from her family and the confidence she built through her experiences, Zoey found her voice. Now, when classmates or friends ask questions, she answers them in her own way and on her own terms. “My friend asked me a question about his mom, who also has cerebral palsy. He wanted to know how he could help her,” Zoey shares excitedly, recounting a recent opportunity for leadership and connection. Her parents remind her often that there is no right or wrong way to tell her story. “You know your body best. And when you’re ready, your voice can help others learn,” they encourage.

The journey has not been easy; Zoey has worked hard to lead a vibrant and full childhood. Her family has faced moments of misunderstanding, stares from strangers and uncomfortable questions like, “what’s wrong with her?” Through the guidance from Grandview Kids, they have learned how to manage expectations, respond and perhaps most importantly, how to educate and advocate – not just for Zoey – but for every child and youth to help build a more inclusive world.

Jessica and AJ encourage other parents to be their child’s voice until they find their own. “Every child deserves to be heard and respected. These conversations should start early, in classrooms and communities,” until they have trickled into the heart of every home.

In May, we acknowledge Asian Heritage Month, Canadian Jewish Heritage Month, Vesak, Mental Health Awareness Week, National Day of Awareness for Missing and Murdered Indigenous Women and Girls, Mother’s Day, International Day Against Homophobia, Transphobia and Biphobia and World Cultural Diversity Day. Below, read more about each date of significance, written by members of our IDEA Committee.

Asian Heritage Month:

Celebrated since the 1990s, Asian Heritage Month is an opportunity to reflect on and celebrate the contributions and achievements of Canadians of Asian descent. During this month, we recognize the rich history of Asian Canadians, as well as the challenges many have faced.

In 2001, the Senate adopted a motion from Senator Vivienne Poy to officially designate May as Asian Heritage Month. This was her declaration:

“Diversity represents one of Canada’s greatest strengths, and we strive to ensure that all people in Canada have the opportunity to reach their full potential and participate in Canada’s civic life. Over the last two centuries, immigrants have journeyed to Canada from East Asia, Southern Asia, Western, Central and Southeast Asia, bringing our society a rich cultural heritage representing many languages, ethnicities and religious traditions. The people of these diverse, vibrant and growing communities have contributed to every aspect of life in Canada — from the arts and science to sport, business and government. Asian Heritage Month offers everyone in Canada an opportunity to learn more about the history of people of Asian origin in Canada and to celebrate their contributions to the growth and prosperity of our society. Thereby, we declare May as Asian Heritage Month in Canada.”

Each diverse and distinct community brings its own knowledge, skills and culture to the Canadian community. People of Asian origin have had an important impact on Canada’s history and identity since the 1700s, when 50 Chinese artisans helped build a Vancouver Island trading post. The Canadian Pacific Railway was built by 17,000 Chinese immigrants. This work was difficult and underpaid, and workers often experienced racism in many forms. The railway was, and remains, important to Canadian life as it allows both passengers and goods to be transported across the country.

Click here to learn more about key historical moments in Asian Canadian history.

Canadian Jewish Heritage Month

Canadian Jewish Heritage Month is observed each May to recognize and celebrate the contributions of Jewish Canadians to the country’s social, cultural, political and economic life. With the fourth-largest Jewish population in the world, the Government of Canada officially established Canadian Jewish Heritage Month in 2018.

This month highlights the rich history, traditions and achievements of Jewish communities across the country. It also serves as a time to reflect on the challenges Jewish Canadians have faced, including the fight against antisemitism and the preservation of cultural identity. Through educational events, cultural exhibitions and community celebrations, Canadian Jewish Heritage Month promotes awareness, understanding and appreciation of Jewish heritage and its role in shaping Canada’s diverse society.

Vesak: May 1

Vesak, observed on May 1, is a day marked by millions of Buddhists around the world. It recognizes the birth, enlightenment and passing of Gautama Buddha. It is a time to reflect on his teachings of compassion, peace and understanding.

Many communities observe the day with temple visits, candlelight ceremonies and acts of generosity. The day serves as a reminder that kindness and mindfulness can support greater harmony in daily life.

Vesak encourages individuals and communities to practise empathy, reduce harm and support one another. It is an opportunity to honour diversity, strengthen connections and reflect on how small acts of goodwill can create meaningful change. Through reflection, service and a commitment to peace, Vesak inspires people to help build a more compassionate world.

Mental Health Awareness Week: May 4 to 10

Stronger connections support better mental health.

Social connection is an important part of overall health and well-being, yet many people continue to feel isolated. From May 4 to 10, the Canadian Mental Health Association (CMHA) is inviting people across Canada to Come Together. The campaign encourages small, everyday actions that build connection and support mental health. Stronger connections help strengthen mental health.

Together, communities can support better mental health, build healthier environments and help more people feel connected. Small actions can help children, youth and adults feel seen, heard and supported, which can improve mental health and well-being.

Awareness of mental health matters. One-third of Ontario parents report a child missing school due to anxiety. One in five children will experience a mental health challenge, and 17 per cent of children with mental health challenges are between the ages of two and five.

A list of resources for information and support is available below:

Home – Children’s Mental Health Ontario
Durham Region -Crisis Lines – Helplines – Mental Health Services
Our Services | Canadian Mental Health Association Durham
988 Lifeline – If you need emotional support, reach out to the national mental health hotline: 988.
Kids Help Phone: 1-800-668-6868 or text CONNECT to 686868.
Check in on your Mental Health l CMHA National
Mental Health Resources l CMHA National
National Child and Youth Mental Health Resources

National Day of Awareness for Missing and Murdered Indigenous Women and Girls: May 5

The National Day of Awareness for Missing and Murdered Indigenous Women and Girls and Two-Spirit People, also known as Red Dress Day, is observed on May 5 in Canada.

The day raises awareness of the ongoing crisis of violence against Indigenous women, girls and Two-Spirit people. It is inspired by Métis artist Jaime Black’s REDress Project, which uses red dresses to represent those who are missing or have been murdered. On this day, we honour their lives and remember those who have been lost.

Missing and murdered Indigenous women and girls (MMIWG) remains a serious human rights issue in Canada, rooted in systemic racism, colonialism and gender-based violence. Indigenous women are affected by violence at a disproportionate rate. It is estimated that more than 4,000 women and girls have gone missing or been murdered.

On Red Dress Day, people are encouraged to wear red and take part in community events such as vigils, workshops and discussions to help raise awareness of the ongoing MMIWG crisis.

Mother’s Day: May 10

Mother’s Day is celebrated in Canada on the second Sunday in May, which falls on May 10, 2026 this year. It is a day to recognize and honour mothers, grandmothers, caregivers and mother figures for the love, care and support they give each day. It is also a time to reflect on the important role they play in families and in the Grandview Kids community.

This year, we recognize the many mothers and caregivers at Grandview Kids whose support helps children and youth grow, learn and reach their potential. Their patience, advocacy and encouragement are an important part of each child’s journey, and their impact is seen every day across our programs and services.

Mother’s Day has roots in early efforts to recognize mothers and promote peace. Today, it is marked in many ways, including cards, flowers, shared meals and time together. While celebrations look different for each family, the day is centred on gratitude and appreciation for those who provide care and support in children’s lives.

The International Day Against Homophobia, Transphobia and Biphobia: May 17

The International Day Against Homophobia, Transphobia and Biphobia, observed on May 17, highlights discrimination and violence faced by LGBTQIA+ people around the world. The date marks the World Health Organization’s 1990 decision to remove homosexuality from its list of mental disorders, a reminder that progress is possible when prejudice is challenged and human rights are defended.

The day encourages communities, allies and organizations to speak out against intolerance and to help create safer, more inclusive spaces for everyone. It is an opportunity to recognize diversity, challenge harmful stereotypes and support those whose voices are often silenced. Through empathy, education and solidarity, communities can help build a world where all people can live openly, authentically and without fear.

World Cultural Diversity Day: May 21

xr:d:DAF07ktaE_g:6,j:7351410535734379976,t:23112222

At Grandview Kids, diversity is recognized and celebrated every day.

Our community is strengthened by the cultures, perspectives and experiences that each child, family and team member brings. By embracing inclusion and learning from one another, we create spaces where everyone feels seen, heard and valued.

On May 21, World Day for Cultural Diversity for Dialogue and Development, we recognize the importance of acceptance, understanding and belonging for every child and family.

We continue to learn, listen and grow together.

Other dates of significance in May:

Pediatric Stroke Awareness Month
Neurofibromatosis Awareness Month
Speech, Language and Hearing Month
Vision Health Month
Williams Syndrome Awareness Month
Childhood Stroke Day: May 3
GBA Plus Awareness Week May 4 to 8
Cinco de Mayo: May 5
Moyamoya Awareness Day: May 6
National Child & Youth Mental Health Day: May 7
World Lupus Day: May 10
Apraxia Awareness Day: May 14
International Day of Families: May 15
Neurofibromatosis Awareness Day: May 17
Victoria Day: May 18
Global Accessibility Awareness Day: May 21
Shavuot: May 22
National Brother’s Day: May 24
National Accessibility Week (May 24 to 30)

When 15-year-old S walks into a room, she radiates light. People naturally gravitate towards her. They are drawn to her social, expressive energy. She loves music, singing, dancing and thrives on connection. She is happiest when she feels included and known. She always strives to bring her family together, whether through bowling nights, shared meals, playing Wii or watching movies. She really enjoys singing with her dad.

S has a sharp memory and sings in multiple languages (at least nine), including English, Spanish, Urdu, Arabic, Swahili and Afrikaans and has memorized the lyrics to hundreds, if not thousands, of songs across multiple genres. She values routine and predictability and can be unsettled by loud, unpredictable noises or sudden changes, but within her comfort zone, she flourishes.

As a newborn, S was under birth weight and later diagnosed at The Hospital for Sick Children (SickKids) with failure to thrive during infancy. She struggled with feeding, sleep and growth. She suffered from extreme colic, uncontrollable crying and sensory processing. S’s mother, Sharon, consulted with a paediatric nutritionist to help improve her symptoms and was then referred to a naturopathic doctor when things did not improve. Through a food sensitivities test, it was discovered that she had a leaky gut and had developed severe sensitivities to certain foods, despite being on a gluten and dairy-free diet.

In 2012, at just two years old, S was referred to Grandview Kids by her family doctor as she was failing to meet her developmental milestones. Upon assessment, a medical team was established, which included a developmental paediatrician, speech-language pathologist (SLP), occupational therapist (OT) and physiotherapist (PT). Little did she know that this was the beginning of her lifelong journey at Grandview Kids.

Initially diagnosed with global developmental delay, S was referred to Lakeridge Health for genetic testing to determine the underlying cause. S was diagnosed with Williams Syndrome (WS), a rare genetic condition affecting approximately 1 in 10,000 people. Caused by a random partial deletion on chromosome 7, which includes the elastin gene, the marker gene for a WS diagnosis.

Those with WS are characterized by similar facial characteristics and an array of medical problems, including cardiovascular disease, gastrointestinal (GI) issues, developmental delays and learning challenges, which S also experiences. Despite these health challenges, they are also known for their friendly, highly empathic qualities, which are part of S’s charming personality. In particular, she has speech and language challenges, decreased cognitive and physical abilities, and sensitivities to loud, unpredictable sounds such as thunderstorms, fire alarms, dogs barking and people laughing or coughing. Her heart is regularly screened by a pediatric cardiologist due to early detection of a heart murmur. Those with WS are prone to cardiovascular narrowing of the arteries and heart attacks.

The diagnosis brought mixed emotions of fear, relief and disbelief all at once. Her parents suspected something was not right, especially as the youngest child of three, but did not yet have the language or roadmap to understand what lay ahead. Sharon was plagued by guilt, thinking it was something she had done. Learning that this random deletion in their daughter’s chromosomes occurred at the time of conception and not by anything they did before or during pregnancy was the first step in a long journey ahead.

What made it harder was the condition’s rarity. It is difficult for people with WS to access dedicated resources, support for treatment, continuity of care or find medical professionals with experience in WS. While in the U.S., those with WS have access to established clinics and conferences, Sharon and her family often felt like they were navigating uncharted territory at home. Still, even in those early days, one thing was clear: S loved music. A simple music box could calm her, distract her enough to eat and bring her joy. Music became a bridge, a way she could connect with the world.

Over the years, S’s Grandview Kids services also expanded to therapeutic recreation, audiology, social work, the orthopaedic clinic, optometry and, most recently, the Adolescent Transition Program. From 2014-2016, Sharon attended monthly Parent Support Group meetings on Saturdays to connect with other families facing similar challenges of raising a child with disabilities.

For Sharon, Grandview Kids quickly became more than a therapy centre. “Grandview Kids became our home away from home,” said Sharon. “It’s the one place where I never had to explain my child or justify her needs. I could just let my guard down and be a mom.”

In other community spaces, Sharon often felt pressured to explain, justify or defend her child’s needs. At Grandview Kids, that pressure disappeared. Parents sat together in waiting rooms without labels or explanations, just shared understanding. No one asked why a child behaved a certain way, and no one judged, so guards came down.

Once S aged out of the Grandview Kids services and entered the school system, she continued to receive school-based rehabilitation services (SBRS). Sharon shares that over the years she has learned to be S’s voice, advocating for her, especially during COVID-19 lockdowns, when she assumed the unofficial title of “educational assistant.” As a social butterfly, she found that those years of isolation and social distancing had a profound effect on her personality, and returning to the physical classroom was a slow adjustment.

Since then, S has learned to find her own voice with Grandview Kids by her side and with mom as her lead example. She is thriving in new ways, enjoying high school and has grown tremendously since overcoming early communication barriers. With advocacy support from her parents and speech therapist, her teachers learned how to better understand and support her. She is now in a practical learning program (PLP) classroom and beginning to develop self-advocacy skills. While transitions can still be hard and loud environments overwhelming, she is confident in who she is and that confidence has been nurtured by her community.

Equally important are caregiver supports through the Family Engagement (FE) Program’s weekly park playdates, parent and youth social nights, monthly coffee chats, summer days at the Barrett Centre rural farm and outings to the pumpkin patch. These moments allow families to build confidence, clarity and connection. One of the most meaningful parts of S’s journey has been the Adolescent Transition Program (ATP), where she met Peer Navigator April W., who has become like extended family.

“April has a big heart and specialized training and combines that with her lived experience to help support other families navigate their journey,” Sharon notes.

ATP was co-designed by parent and youth advocates and various members of Team Grandview. ATP puts the family voice at the centre of program development. The program is supported by a grant from TD Bank and pioneered by FE Program Manager, Andrea B. She brings both the parent/caregiver and peer lived experience to provide support and resources to families when clients transition from paediatric to adult care. Sharon also attended ATP workshops that share vital information on funding, guardianship and post-secondary education.

Since being part of ATP, when S hears “Grandview,” she thinks of the amazing friendships she has fostered and the fun dance parties that she gets to attend. The enthusiasm is spilling into other areas of her life, including therapy and school. Sharon sees the excitement in S’s eyes and the joy bubbles and overflows.

To Grandview Kids families who feel hesitant or unsure about making connections with others, Sharon offers simple advice,

“If you’re hesitant, just come. You don’t know what you’re missing. You’ll learn, you’ll connect and you’ll realize you’re not alone.”

Living with a child with physical, communication or developmental needs comes with uncertainty, but it also comes with extraordinary joy, resilience and connection. S reminds everyone she meets that difference is not something to fix, but something to understand, support and celebrate. At Grandview Kids, S receives services, but she’s also dancing, connecting and shining exactly as she should.