By: Grandview Kids — April 18, 2019
Here at Grandview, we have many helpful resources available for parents and families that you may not be aware of! Not only that, but there are also a number of external research projects we’re recruiting for in support of our partner institutions that could prove incredibly useful for parents and patients alike.
In this blog post, we’re going to highlight a few of our incredible resources and current research opportunities for families to get involved with, so you don’t miss a beat.
Planning Network – P4P (Resource)
What it’s for: The Planning Network is an incredibly useful site. The pages of the P4P website are jam packed with free resources “designed to empower people with disabilities, families and caregivers to create meaningful lives and secure futures, firmly rooted in community.” P4P is a network of professionals, organizations and agencies, making it one of the best planning resources available to Ontario families.
How it works: P4P offers planning strategies, tools and solutions for families with special needs. Resource categories include planning for the future, creative options for home, legal and financial planning and federal & provincial supports to name a few. You can also download and print planning tip sheets for every age group.
What it is: The CP-NET research data base is a research project funded by the Ontario Brain Institute. They are collecting information in order to better understand the number of children affected by Cerebral Palsy (CP) across Ontario and what causes CP, so they can improve care and treatments.
How it works: Participants attend two research assessments one to four years apart. The first assessment asks about your family, medical history and child’s experience with CP. During both assessments, your child will be seen by a doctor who will examine their movements. During the second assessment, your child may be given a brief learning assessment.
Who it’s for: Children aged 2-7 years old, who have CP and live in certain regions of Ontario would be eligible.
Your participation will enable researchers to study the causes of CP, identify risk factors and develop treatments and interventions to improve outcomes and care for children with CP. You will also receive a $20 gift card to Chapters after the completion of each assessment.
What it is: The ACSF:SC tool allows parents and professionals to identify what children “can do” in terms of social communication. The ADOS is commonly used by professionals to diagnose autism, and it is important for us to understand how it relates to the ACSF:SC. Knowing this information will allow CanChild to use the ADOS in a new way and to determine children’s social communication abilities. This study will help us learn if parent ratings with the ACSF:SC tool can help predict what children’s social communication abilities will be like as they grow older. The five social communication levels found in the ACSF:SC tool will allow both parents and professionals to have a common way to classify children’s abilities.
How it works: Participants will be asked to give permission for the research team to access their child’s assessment completed in clinic, the Autism Diagnostic Observation Schedule (ADOS). Participants will be asked to rate their child’s social communication abilities with a quick and easy tool, the Autism Classification System of Functioning: Social Communication (ACSF:SC).
Who it’s for: Parents or guardians of children between their 3rd and 6th birthdays, who have had an Autism Diagnostic Observation Schedule (ADOS).You will have an opportunity to use the ACSF:SC to identify your child’s social communication abilities.
You will receive a $20 gift card to Chapters upon completion of the study.
Questions? Want to participate? Contact Angela Kielbowski via phone at 905-728-1673 x 2547. Don’t forget to constantly check back to our Research & Innovation page for updates and further research.
Wondering what other resources are available to you? Check our resource page for a complete listing!