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Grandview Children’s Centre is a supporter of discovery and innovation in research in child development and rehabilitation science. Our Research & Innovation Committee identifies priority areas for research and advises where our resources and/or support should be directed.

Grandview’s Research & Innovation Committee:

  • Chair: Dr. Carolyn Hunt, Medical Director, Developmental Pediatrician
  • Emma Delemere, Behavioural Consultant
  • Lindsay Gurr, Physiotherapist
  • Janet Isaac, Clinical Manager
  • Angela Kielbowski, CPNET and ACSF:SC Research Assistant
  • Dr. Shannon Knights, Developmental Pediatrician
  • Sarah Lee, Communicative Disorders Assistant
  • ex officio: Leslie Suite, Speech-Language Pathologist & Director of Clinical Services
  • ex officio: Lorraine Sunstrum-Mann, Chief Executive Officer
  • Recorder: Jackie Down, Medical Services Assistant

Read our RESEARCH PORTFOLIO 2017-2022 for a complete list of all our research projects:

Please note:

GrandviewKids is only directly involved in the CPNET and ACSF:SC Studies. Recruitment for the other studies occurs off-site. Each study has been approved by the GrandviewKids Research and Innovation Committee.

CPNET Research Flyer
CPNET Flyer

The CP-NET Research Database is an Ontario Brain Institute funded research project. We are collecting information to better understand how many kids are affected by Cerebral Palsy (CP) in different parts of Ontario and what causes CP so that we can improve care and treatments.

What’s involved?

Study participants will attend two research assessments, approximately 1-4 years apart. During the first assessment we will ask you questions about your family and medical history and your child’s experience with CP. We will collect saliva samples from you and your child. We will also ask to review your family’s medical charts and collect any past brain scans your child may have had. During both assessments, your child will be seen by a doctor who will examine his or her movements. Lastly, your child may be given a brief learning assessment during the second assessment.

Who can participate?

Children aged 2-7 years old, who have CP and live in certain regions of Ontario.

Why should you consider participating?

Your participation will enable researchers to study the causes of CP, identify risk factors and develop treatments and interventions to improve outcomes and care for children with CP. You will receive a $20 gift card to Chapters after the completion of each research assessment.

Contact Information

Angela Kielbowski
(905) 728-1673 ext. 2547
toll-free 1(800) 304-6180 ext. 2547

 

Information updated: August 29 2017
Study expires: March 31, 2018

 

Befast Research Flyer
Befast Flyer

Researchers at Holland Bloorview Kids  Rehabilitation Hospital are doing research to learn how activity of the brain changes after two different programs of physical activity based training. They will also study change in movement and participation to see if these changes are linked to brain change.

What’s involved?

Children will have 16 sessions of training over 6 weeks (two-three times per week for 45 minutes). Each child will either have training that focuses on sports-skills like running, or training that focuses on lower limb strength. All children will have two scans of their brain done at Baycrest Hospital using functional magnetic resonance imaging (fMRI). One brain scan will be before the training and the second scan will be after the training. Each visit is 2 hours. There will be three assessments: Before and after the training, and again 4 months after the training is over. Each assessment is 2.5 hours. At the assessments, we will look at how children move. We will also ask questions about activities children participate in, and how they feel about these activities.

Who can participate?

Children ages 7-17 with Cerebral Palsy that affects just one side of their body, or mostly their legs, and who can walk on their own without a walking aid.

Why should you consider participating?

The brain pictures may help us to understand how the brain changes after training, and help us understand how we can help children get better at physical activity skills.

Contact Information

Alicia Hilderley
(416) 425-6220 ext. 3321
ahilderley@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires:

ACSF:SC Research Flyer
ACSF:SC Flyer

Researchers need help from parents/guardians of children with Autism for a new study to examine the relationship between clinician-completed ADOS assessments and your own completed ACSF:SC ratings.

The ACSF:SC tool allows parents and professionals to identify what children ‘can do’ in terms of social communication. This is not a tool to measure severity of autism. The ADOS is commonly used by professionals to diagnose autism, and it is important for us to understand how it relates to the ACSF:SC. Knowing this will allow us to use the ADOS in a new way, in the future, to determine children’s social communication abilities.

This study will help us learn if parent ratings with the ACSF:SC tool can help predict what children’s social communication abilities will be like as they grow older. This is similar to having a doctor predict how tall a child might be, based on measuring height at a check- up. The five social communication levels found in the ACSF:SC tool will allow both parents and professionals to have a common way to classify children’s abilities.

What’s involved?

Participants will be asked to give permission for the research team to access their child’s assessment completed in clinic, the Autism Diagnostic Observation Schedule (ADOS). Participants will be asked to rate their child’s social communication abilities with a quick and easy tool, the Autism Classification System of Functioning: Social Communication (ACSF:SC).

Who can participate?

Parents or guardians of children between their 3rd and 6th birthdays, who have had an Autism Diagnostic Observation Schedule (ADOS).

Why should you consider participating?

You will have an opportunity to use the ACSF:SC to identify your child’s social communication abilities. You will receive a $20 gift card to Chapters upon completion of the study.

Contact Information

Helena Viveiros
(905) 525-9140 ext. 27849
viveiro@mcmaster.ca

 

Information updated: August 29, 2017
Study Expires:

 

 

POND Research FlyerHolland Bloorview Kids Rehabilitation Hospital Autism Research Centre and the POND-Network are currently conducting new research studies across Ontario to understand how genes and biology affect the brain and behaviour in Autism and other Neurodevelopmental Disorders.

What’s involved?

Please contact Susan Day Fragiadakis (see below) for detailed information on current studies.

Who can participate?

Children 21 years or younger who have a Neurodevelopmental disorder (e.g., ASD, Intellectual Disability, Rett Syndrome or Fragile X, Down Syndrome, Anxiety Disorder) and typically developing children between the ages of 3 – 21 years.

Why should you consider participating?

By participating you are helping researchers understand how genes affect the brain, body, and behavior, and then translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.

Contact Information

Susan Day Fragiadakis
(416) 425-6220 ext. 6518
sfragiadakis@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires: March 31, 2018

NPAM Study Poster
NPAM Study Poster

The National Physical Activity Monitoring (NPAM) Study seeks to quantify current trends in physical activity among youth (ages 12 – 21 years) with physical disabilities and visual impairments across Canada.  This study is being conducted by researchers in the Faculty of Kinesiology at the University of Toronto and the School of Kinesiology and Health Science at York University.

What’s involved?

Participation in this study will involve the completion of two telephone interviews, asking the participant to recall what activities they did the day before. There will also be two short surveys about parental support and motivation to be physically active.

For those who are interested in participating, there is an additional component to the study that entails the participant wearing an activity measuring device (i.e. an accelerometer) for a 7-­‐ day period, for at least 10 hours a day. Those who wear the accelerometer will be compensated with a $5 e-­Gift Card. Those who wear the accelerometer for 4 out of the 7 days for at least 10 hours a day will be compensated with an additional $10, for a total of $15. Your participation in this study can count towards your volunteer/community service hours too – we are providing 5 volunteer hours for your participation.

Who can participate?

Youth (ages 12 – 21 years) with physical disabilities and visual impairments across Canada.

Why should you consider participating?

Participants will be compensated for each telephone interview they complete ($10 e-­Gift Card for each interview). Each interview will last approximately 30 – 45 minutes.

Contact Information

Ritu Sharma
ri.sharma@mail.utoronto.ca

 

Information updated: August 29, 2017
Study Expires:

TIDE Research FlyerThe Autism Research Centre at Holland Bloorview Kids Rehabilitation Hospital is conducting a research study looking for young people (ages 12-17) with ASD. The overall goal of the study is to see if the medication tideglusib helps to improve symptoms of Autism Spectrum Disorder, specifically social engagement, social functioning (e.g. learning how to talk to others, making friends) and repetitive behaviours.

What’s involved?

The study lasts a total of 16 weeks (about 4 months) and involves taking the medication dissolved in water every day for three months, with a follow up visit one month later. You and your child will first be asked to come in for a screening session; through talking with you and completing some assessments we will determine if your child meets eligibility criteria. If your child meets criteria, you will then receive either tideglusib or placebo. Visits will take place every two weeks while your child is taking the drug or placebo. This study also has an optional continuation part, which means that if you were given placebo, you will be able to take tideglusib at the end of the four months. The same tests and procedures will be followed that were followed during the main study.

Who can participate?

Individuals aged 12-17 with Autism Spectrum Disorder who meet the eligibility criteria identified at the screening session.

Why should you consider participating?

Participation in this study will help researchers see if the medication tideglusib helps to improve symptoms of Autism Spectrum Disorder.

Contact Information

Naomi Peleg
(416) 425-6220 ext. 3456
npeleg@hollandbloorview.ca

 

Information updated: August 29, 2017
Study Expires:

Infant Sibling Research Flyer
Infant Sibling Poster

Researchers are trying to determine whether early behavioural signs of Autism Spectrum Disorder (ASD) can be observed in young infants. Second we hope to learn more about whether differences in certain body signals (such as temperature, heart rate, sweating) during a variety of tasks can be observed. We want to see if these signs are different in infants who go on to have ASD, compared to those who do not.

What’s involved?

We will use tests that look at the symptoms of autism, tests that look at the way that your child thinks and behaves, and activities that look at the way your child reacts. Your child will be seen for their first visit at 6 or 12 months based on their age at recruitment. Your child will be followed in 6 month intervals between 6 months and 24 months then at 36 months. Parent interviews and questionnaires will also be completed at these time points.

Who can participate?

Younger siblings (6-12 months of age) who have an older sibling with ASD OR younger siblings (6-12 months of age) who have an older sibling whose families do not have a history of ASD.

Why should you consider participating?

By participating you will receive ongoing feedback about your child’s development, have opportunities to ask questions about your child’s development and contribute to our understanding of autism.

Contact Information

Jessica Contini
(416) 425-6220 ext. 6352
jcontini@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires: 2019

 

The purpose of this research is to see if motor skills, social skills and behavioural skills improve after a motor skill intervention.

What’s Involved?

The motor skill intervention is an instructional play-based program that will take place at the UOIT Physical Activity and Motor Behaviour lab and will be run by highly trained personnel as well as graduate and undergraduate Kinesiology students at UOIT. Children will receive 12 weeks of intervention for 2 hours/week. Children will be randomly assigned to either Group 1, which receives the intervention first, or Group 2, which receives the intervention second. Children will participate in 3 assessments and play dates in addition to the intervention sessions.

Who can participate?

Children aged 3-5 years old with Autism Spectrum Disorder (ASD).

Why should you consider participating?

By participating you will help researchers determine whether this motor-skill intervention improves motor, social and behavioural skills in children aged 3-5 with ASD.

Contact Information

For more information please contact:

Dr. Meghann Lloyd
Meghann.lloyd@uoit.ca.

 

The purpose of this research is to better understand how the autism spectrum is experienced by girls and women, and the health-care needs of girls and women on the autism spectrum.

What’s Involved?

You will be asked to participate in an interview. You can choose an interview on your own (for about 1.5 hours), or in a focus group (for about 2 hours).
You will be asked questions about your health, health care and experiences of being a girl or women on the autism spectrum.
Girls on the autism spectrum, women on the autism spectrum, parents/caregivers, and health/education professionals will be interviewed separately, or participate in separate focus groups.

Who can participate?

We are looking for participants who are either:
(1) Older than 12 years, with an autism spectrum disorder (ASD) diagnosis OR who are self-diagnosed, and who are female assigned at birth;
(2) Parents/caregivers of girls or women on the autism spectrum; or
(3) Health and/or education professionals working with girls or women with ASD.
*Please note that at this stage, we are looking specifically for girls/women with ASD between ages 12 to 18, and parents/caregivers of girls/women with ASD*
This research will help us improve the identification, health care and support of girls and women on the autism spectrum.
To participate in this study, you must be capable of providing informed consent or assent.

Additionally, you must:
Be verbal and fluent in the English language
Have not been identified as having an intellectual disability
Not be experiencing extreme mood and/or psychosis symptoms
You will be compensated for your time.

Why should you participate?

By participating in this study you will help researchers better understand how the autism spectrum is experienced by girls and women, and the health-care needs of girls and women on the autism spectrum.

Contact Information

Caroline Kassee
caroline.kassee@camh.ca
(416) 535-8501 x 39385

 

A research study is recruiting parents/guardians to share stories about setting clear expectations for working with service providers during children’s rehabilitation. Stories may come from any time during your family’s rehabilitation journey.

What’s involved?

The study involves parents/guardians doing a single one-hour interview with a researcher.
• You can choose to be interviewed at Grandview, at home, or by phone.
• Interview topics include a) what expectations have you had for yourself and service providers; b) how have your expectations changed over time; and c) strategies you and your service providers have used to resolved possible differences in expectations.
• Before the interview, you can choose to review sample interview questions if that helps.
• After the interview, you can review and edit how our talk was interpreted.

Who can participate?

Parents/caregivers who…
• Self-identify as having or anticipating a significant and long-term role in supporting their child’s involvement in rehab.
• Have a child between 3 to 25 (excluding children with a progressive health condition).
• Are currently involved in children’s rehab services or were involved within the past three years.
• Communicate in English.

Why should you consider participating?

The stories participants share will help service providers understand how to make family-centred care service delivery more inclusive to parents/caregivers with diverse and changing beliefs. Participants will receive a $50 gift card as a thank you and a summary of what we have learned from the study.

Contact Information

Eric Smart
ESmart@hollandbloorview.ca
416-425-6220 extension 3157

Study expires: February 5th, 2019

 

 

This study seeks to understand the experiences of African-Canadian immigrant parents who have a child with a developmental disability (e.g., autism spectrum disorder, Down syndrome, intellectual disability, genetic disorders) and the factors that are related to positive outcomes for these parents. This study is being conducted by researchers in the Department of Psychology at York University.

What’s involved?

Participation in this study will involve the completion of an interview (approximately 1 hour) and a questionnaire (approximately 20 mins). The interview can be completed in person or over the phone. The questionnaire can be completed online or on paper. Parents do not have to complete both the interview and questionnaire if they would only like to be involved in one portion of the study or the other.

Who can participate?

Parents who (1) have a child with a developmental disability, (2) are immigrants, and (3) were born in an African country.

Why should you consider participating?

Participants will be compensated with $35. Participation in this study will help researchers understand what factors contribute to positive experiences among African-Canadian immigrant parents who have a child with a developmental disability. Little research has been done looking at immigrant parents specifically and immigrants of African descent tend to be underrepresented in the existing research. We believe that your experiences and opinions are important and would like to be able to represent them. We hope to use this information to inform healthcare and service providers on what ways your families can best be supported.

Contact Information

Busi Ncube
perrylab@yorku.ca
416-736-2100 ext. 40266

 

Study Expires: May 31, 2019

The purpose of this research is to understand whether our employment intervention is useful for youth looking for jobs. We are comparing two different online employment programs—one with and the other without online peer mentoring.

What’s involved?

Participants will be asked to take part in an online discussion at least 3 times per week for 4 weeks (3 new topics each week) and complete a survey at the beginning and end of the program

Who can participate?

We are looking for:
• Youth with a physical disability, aged 15-25
• Able to read/write in English
• Currently enrolled in or recently completed high school in the applied / academic stream
• Have access to a computer and internet

Why should you consider participating?

Your participation will help researchers learn whether our employment readiness topics meet the needs of youth with disabilities. You will receive a gift card for participating and a letter for volunteer hours (if requested)

 

Contact Information

Elaine Cagliostro
ecagliostro@hollandbloorview.ca
(416) 425-6220 x6496

Some children and youth with cerebral palsy experience fatigue that impacts
their health and day-to-day life activities. At this time, we don’t know who is
most impacted by fatigue, and when fatigue becomes a problem, our study will
help us learn these things

What’s involved?

This study involves completing questionnaires online. Participants will be part
of the study for one year and will provide answers to questionnaires two
times. Each time it will take about 30-45 minutes to fill out the survey.
Participants in the research will receive a $15 electronic gift card to iTunes or
Chapters/Indigo (your choice) when you complete the second survey.
This study will run from July 2018 to December 2019.

Who can participate?

Eligible participants are those who:
• Have a diagnosis of Cerebral Palsy
• Are between 7 and 18 years old
• Speak English

 

Why Should You Consider Participating?

Knowing more information about fatigue experienced by youth with cerebral palsy will help researchers and therapists develop treatments for this condition.

 

Contact Information

Laura Brunton
lbrunto3@uwo.ca
(519) 661-2111 x81501

 

expires December 2019

We are inviting you and your child to take part in the National Physical Activity Measurement (NPAM) study! The purpose of the NPAM study is to measure current trends in physical activity, sleep, and screen-time behaviour among Canadian children and youth with disabilities.

Who can participate?

We are looking for Canadian children and youth (ages 4 to 17 years) with any type of disability and their parents to participate. Please note that at this stage in our study, children and youth with Autism Spectrum Disorder are not eligible to participate.

What’s involved?

• Children and youth will be asked to wear a Fitbit for 30 days, ideally for 24-hours a day.
• Youth (ages 10 to 17 years) will be asked to complete one, 45-minute telephone interview about their daily activities and well-being.
• Parents will be asked to complete a 30-minute online survey about their child’s daily activities and well-being.

Why should you consider participating?

Your input will help us understand the typical behaviours and well-being of children and youth with disabilities. This kind of information will help support the development of evidence-based policies and programs to better serve Canadian kids with disabilities.
Children and youth will have the opportunity to keep the Fitbit after wearing it for 30 days. Youth will receive 5 community service/volunteer hours for completing the interview. Parents will receive a $10 gift card of their choice for completing the online survey.

Contact Information

Ritu Sharma
ri.sharma@mail.utoronto.ca