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Grandview Children’s Centre is a supporter of discovery and innovation in research in child development and rehabilitation science. Our Research & Innovation Committee identifies priority areas for research and advises where our resources and/or support should be directed.

Grandview’s Research & Innovation Committee:

  • Chair: Dr. Carolyn Hunt, Medical Director, Developmental Pediatrician
  • Emma Delemere, Behavioural Consultant
  • Janet Isaac, Clinical Manager
  • Angela Kielbowski, CPNET and ACSF:SC Research Assistant
  • Dr. Shannon Knights, Developmental Pediatrician
  • Sarah Lee, Communicative Disorders Assistant
  • ex officio: Leslie Suite, Speech-Language Pathologist & Director of Clinical Services
  • ex officio: Lorraine Sunstrum-Mann, Chief Executive Officer
  • Recorder: Jackie Down, Medical Services Assistant

Read our RESEARCH PORTFOLIO 2017-2022 for a complete list of all our research projects:

Please note:

GrandviewKids is only directly involved in the CPNET and ACSF:SC Studies. Recruitment for the other studies occurs off-site. Each study has been approved by the GrandviewKids Research and Innovation Committee.

CPNET Research Flyer
CPNET Flyer

The CP-NET Research Database is an Ontario Brain Institute funded research project. We are collecting information to better understand how many kids are affected by Cerebral Palsy (CP) in different parts of Ontario and what causes CP so that we can improve care and treatments.

What’s involved?

Study participants will attend two research assessments, approximately 1-4 years apart. During the first assessment we will ask you questions about your family and medical history and your child’s experience with CP. We will collect saliva samples from you and your child. We will also ask to review your family’s medical charts and collect any past brain scans your child may have had. During both assessments, your child will be seen by a doctor who will examine his or her movements. Lastly, your child may be given a brief learning assessment during the second assessment.

Who can participate?

Children aged 2-7 years old, who have CP and live in certain regions of Ontario.

Why should you consider participating?

Your participation will enable researchers to study the causes of CP, identify risk factors and develop treatments and interventions to improve outcomes and care for children with CP. You will receive a $20 gift card to Chapters after the completion of each research assessment.

Contact Information

Angela Kielbowski
(905) 728-1673 ext. 2547
toll-free 1(800) 304-6180 ext. 2547

 

Information updated: August 29 2017
Study expires: March 31, 2018

 

Befast Research Flyer
Befast Flyer

Researchers at Holland Bloorview Kids  Rehabilitation Hospital are doing research to learn how activity of the brain changes after two different programs of physical activity based training. They will also study change in movement and participation to see if these changes are linked to brain change.

What’s involved?

Children will have 16 sessions of training over 6 weeks (two-three times per week for 45 minutes). Each child will either have training that focuses on sports-skills like running, or training that focuses on lower limb strength. All children will have two scans of their brain done at Baycrest Hospital using functional magnetic resonance imaging (fMRI). One brain scan will be before the training and the second scan will be after the training. Each visit is 2 hours. There will be three assessments: Before and after the training, and again 4 months after the training is over. Each assessment is 2.5 hours. At the assessments, we will look at how children move. We will also ask questions about activities children participate in, and how they feel about these activities.

Who can participate?

Children ages 7-17 with Cerebral Palsy that affects just one side of their body, or mostly their legs, and who can walk on their own without a walking aid.

Why should you consider participating?

The brain pictures may help us to understand how the brain changes after training, and help us understand how we can help children get better at physical activity skills.

Contact Information

Alicia Hilderley
(416) 425-6220 ext. 3321
ahilderley@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires:

Sibling Study K Trandovski Research FlyerIndividuals who have a brother or sister with Down Syndrome, Cystic Fibrosis, and Cerebral Palsy are currently being recruited for a research study. This study explores the experiences of a sibling of someone with a disability, including the positive experiences and some of the hardships that the sibling may face.

What’s involved?

Participation would include an interview, which may take one hour to complete, as well as two online questionnaires, which will require an additional 30 minutes.

Who can participate?

Eligible participants are typically developing and have a brother or sister with Down syndrome, cystic fibrosis, or cerebral palsy. Adults and children over the age of 6 are invited to participate.

Why should you consider participating?

Siblings are often overlooked in family research; therefore the goal of this study is to better understand the everyday experiences of these siblings. With the results of this study, we hope to inform organizations and clinicians on what is important or lacking in the area of support for siblings of someone with a disability, which can result in services tailored to these siblings’ specific needs.

Contact Information

Kristina Trandovski
ktrandovski@laurentian.ca

or

Shelley Watson
1 (800) 461-4030 ext. 4223
swatson@laurentian.ca

 

Information updated: August 29, 2017
Study expires:

RILS Research FlyerThe goal of the study is to understand how youth feel about themselves as they grow and change over the course of a year.

What’s involved?

The study involves completing questionnaires and interviews. Participants will be part of the study for one year and will provide data four times. Each data collection session will take about 30 minutes. The study will run from December 2014 to November 2018.

Who can participate?

Eligible participants are those who:

  • Attend a residential or non-residential life-skills program or be a matched non-participating youth
  • Are between 14 and 21 years old
  • Have a child-onset disability
  • Are able to set goals for themselves; and
  • Speak English

Why should you consider participating?

Participants in the study will help to shape the way that Life Skills Programs are organized to help youth with disabilities. Participants in the research will receive a $15 gift card the first three times that they provide data and a $25 gift card the last time.

Contact Information

Alanna Rudzik
(416) 425-6220 ext. 6554

 

Information updated: August 29, 2017
Study expires: November 2018

ACSF:SC Research Flyer
ACSF:SC Flyer

Researchers need help from parents/guardians of children with Autism for a new study to examine the relationship between clinician-completed ADOS assessments and your own completed ACSF:SC ratings.

The ACSF:SC tool allows parents and professionals to identify what children ‘can do’ in terms of social communication. This is not a tool to measure severity of autism. The ADOS is commonly used by professionals to diagnose autism, and it is important for us to understand how it relates to the ACSF:SC. Knowing this will allow us to use the ADOS in a new way, in the future, to determine children’s social communication abilities.

This study will help us learn if parent ratings with the ACSF:SC tool can help predict what children’s social communication abilities will be like as they grow older. This is similar to having a doctor predict how tall a child might be, based on measuring height at a check- up. The five social communication levels found in the ACSF:SC tool will allow both parents and professionals to have a common way to classify children’s abilities.

What’s involved?

Participants will be asked to give permission for the research team to access their child’s assessment completed in clinic, the Autism Diagnostic Observation Schedule (ADOS). Participants will be asked to rate their child’s social communication abilities with a quick and easy tool, the Autism Classification System of Functioning: Social Communication (ACSF:SC).

Who can participate?

Parents or guardians of children between their 3rd and 6th birthdays, who have had an Autism Diagnostic Observation Schedule (ADOS).

Why should you consider participating?

You will have an opportunity to use the ACSF:SC to identify your child’s social communication abilities. You will receive a $20 gift card to Chapters upon completion of the study.

Contact Information

Helena Viveiros
(905) 525-9140 ext. 27849
viveiro@mcmaster.ca

 

Information updated: August 29, 2017
Study Expires:

 

 

Kids Brain Health Network (KBHN formerly NeuroDevNet) wishes to conduct an environmental scan with diverse stakeholders in order to inform future research directions, based on the needs and challenges experienced by parents of children with Cerebral Palsy (CP), Fetal Alcohol Spectrum Disorders (FASD), Autism Spectrum Disorders (ASD).

What’s involved?

Participation involves completing a 10 minute, online, anonymous survey (available below) to help us prioritize the 44 stakeholder needs we identified in the first phase of this project.

English version of prioritization survey
French version of prioritization survey

Who can participate?

  • parent of a child with either CP, FASD, ASD;
  • self-advocate (adult or teenager);
  • elementary or high school teacher;
  • educational assistant;
  • early childhood educator (pre-school);
  • family or ER physician;
  • psychiatrist or psychologist;
  • nurse;
  • occupational therapist or physical therapist;
  • university-based researcher;
  • social worker; or
  • front line worker delivering interventions to children/youth with CP, ASD, FASD.

Why should you consider participating?

KBHN is well-positioned to make real changes for parents and children affected by neurodevelopmental disorders, with its federal, provincial and local contacts and networks.  By participating in this survey you will be helping KBHN to make resource allocation decisions for future research and knowledge translation activities, based on your insights, experience and knowledge.  This will in turn help KBHN to maximize the potential usefulness (and impact) of the projects being conducted by KBHN, to help improve the quality of life for children, parents and families affected by Cerebral Palsy, Fetal Alcohol Spectrum Disorders, and Autism Spectrum Disorders

Contact Information

Anneliese Poetz, PhD
(416) 736-2100 ext. 44310

 

Information updated: August 29, 2017
Study expires: August 30, 2017

POND Research FlyerHolland Bloorview Kids Rehabilitation Hospital Autism Research Centre and the POND-Network are currently conducting new research studies across Ontario to understand how genes and biology affect the brain and behaviour in Autism and other Neurodevelopmental Disorders.

What’s involved?

Please contact Susan Day Fragiadakis (see below) for detailed information on current studies.

Who can participate?

Children 21 years or younger who have a Neurodevelopmental disorder (e.g., ASD, Intellectual Disability, Rett Syndrome or Fragile X, Down Syndrome, Anxiety Disorder) and typically developing children between the ages of 3 – 21 years.

Why should you consider participating?

By participating you are helping researchers understand how genes affect the brain, body, and behavior, and then translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.

Contact Information

Susan Day Fragiadakis
(416) 425-6220 ext. 6518
sfragiadakis@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires: March 31, 2018

NPAM Study Poster
NPAM Study Poster

The National Physical Activity Monitoring (NPAM) Study seeks to quantify current trends in physical activity among youth (ages 12 – 21 years) with physical disabilities and visual impairments across Canada.  This study is being conducted by researchers in the Faculty of Kinesiology at the University of Toronto and the School of Kinesiology and Health Science at York University.

What’s involved?

Participation in this study will involve the completion of two telephone interviews, asking the participant to recall what activities they did the day before. There will also be two short surveys about parental support and motivation to be physically active.

For those who are interested in participating, there is an additional component to the study that entails the participant wearing an activity measuring device (i.e. an accelerometer) for a 7-­‐ day period, for at least 10 hours a day. Those who wear the accelerometer will be compensated with a $5 e-­Gift Card. Those who wear the accelerometer for 4 out of the 7 days for at least 10 hours a day will be compensated with an additional $10, for a total of $15. Your participation in this study can count towards your volunteer/community service hours too – we are providing 5 volunteer hours for your participation.

Who can participate?

Youth (ages 12 – 21 years) with physical disabilities and visual impairments across Canada.

Why should you consider participating?

Participants will be compensated for each telephone interview they complete ($10 e-­Gift Card for each interview). Each interview will last approximately 30 – 45 minutes.

Contact Information

Ritu Sharma
ri.sharma@mail.utoronto.ca

 

Information updated: August 29, 2017
Study Expires:

TIDE Research FlyerThe Autism Research Centre at Holland Bloorview Kids Rehabilitation Hospital is conducting a research study looking for young people (ages 12-17) with ASD. The overall goal of the study is to see if the medication tideglusib helps to improve symptoms of Autism Spectrum Disorder, specifically social engagement, social functioning (e.g. learning how to talk to others, making friends) and repetitive behaviours.

What’s involved?

The study lasts a total of 16 weeks (about 4 months) and involves taking the medication dissolved in water every day for three months, with a follow up visit one month later. You and your child will first be asked to come in for a screening session; through talking with you and completing some assessments we will determine if your child meets eligibility criteria. If your child meets criteria, you will then receive either tideglusib or placebo. Visits will take place every two weeks while your child is taking the drug or placebo. This study also has an optional continuation part, which means that if you were given placebo, you will be able to take tideglusib at the end of the four months. The same tests and procedures will be followed that were followed during the main study.

Who can participate?

Individuals aged 12-17 with Autism Spectrum Disorder who meet the eligibility criteria identified at the screening session.

Why should you consider participating?

Participation in this study will help researchers see if the medication tideglusib helps to improve symptoms of Autism Spectrum Disorder.

Contact Information

Naomi Peleg
(416) 425-6220 ext. 3456
npeleg@hollandbloorview.ca

 

Information updated: August 29, 2017
Study Expires:

Infant Sibling Research Flyer
Infant Sibling Poster

Researchers are trying to determine whether early behavioural signs of Autism Spectrum Disorder (ASD) can be observed in young infants. Second we hope to learn more about whether differences in certain body signals (such as temperature, heart rate, sweating) during a variety of tasks can be observed. We want to see if these signs are different in infants who go on to have ASD, compared to those who do not.

What’s involved?

We will use tests that look at the symptoms of autism, tests that look at the way that your child thinks and behaves, and activities that look at the way your child reacts. Your child will be seen for their first visit at 6 or 12 months based on their age at recruitment. Your child will be followed in 6 month intervals between 6 months and 24 months then at 36 months. Parent interviews and questionnaires will also be completed at these time points.

Who can participate?

Younger siblings (6-12 months of age) who have an older sibling with ASD OR younger siblings (6-12 months of age) who have an older sibling whose families do not have a history of ASD.

Why should you consider participating?

By participating you will receive ongoing feedback about your child’s development, have opportunities to ask questions about your child’s development and contribute to our understanding of autism.

Contact Information

Jessica Contini
(416) 425-6220 ext. 6352
jcontini@hollandbloorview.ca

 

Information updated: August 29, 2017
Study expires: 2019

 

Policy Dialogue Research Study Flyer This project aims at identifying the gaps and possible solutions in informing policy making to support the human rights of children with disabilities.  It is being run by a research team based at McGill University.

What’s involved?

Participants will complete an online questionnaire and respond to a telephone validation interview if interested.  Participants may participate in the following ways:

1) By completing an online questionnaire (time commitment of 20-30 minutes;
2) By completing an interview (30 minutes-1 hour); or
3) By participating in a focus group with approximately 10 other parents/family members (1 hour).

You can complete the survey online here using this survey access code: 7FCTNP4WW

Who can participate?

Parents, family members and/or legal guardians of children and youth with disabilities and youth with disabilities, as well as children and youth with a range of disabilities.

Why should you consider participating?

Currently, there are limited opportunities for children with disabilities to engage in decision-making and to voice their opinion about important aspects related to their life. This study aims to provide children with severe disabilities and their families with the opportunity to give their input on the research evidence, and help frame the information that will be provided to policymakers. A $10 Tim Hortons gift card will be sent to participants upon completion of the survey

Contact Information

Keiko Shikako-Thomas
keiko.thomas@mcgill.ca

or

Meaghan Shevell
mcs2251@columbia.edu

 

Information updated: August 29, 2017
Study expires: September 2017