News

Here at Grandview, we have many helpful resources available for parents and families that you may not be aware of! Not only that, but there are also a number of external research projects we’re recruiting for in support of our partner institutions that could prove incredibly useful for parents and patients alike.

In this blog post, we’re going to highlight a few of our incredible resources and current research opportunities for families to get involved with, so you don’t miss a beat.

Planning Network – P4P (Resource)

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What it’s for: The Planning Network is an incredibly useful site. The pages of the P4P website are jam packed with free resources “designed to empower people with disabilities, families and caregivers to create meaningful lives and secure futures, firmly rooted in community.” P4P is a network of professionals, organizations and agencies, making it one of the best planning resources available to Ontario families.

How it works: P4P offers planning strategies, tools and solutions for families with special needs. Resource categories include planning for the future, creative options for home, legal and financial planning and federal & provincial supports to name a few. You can also download and print planning tip sheets for every age group.

CP-NET (Research)

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What it is: The CP-NET research data base is a research project funded by the Ontario Brain Institute. They are collecting information in order to better understand the number of children affected by Cerebral Palsy (CP) across Ontario and what causes CP, so they can improve care and treatments.

How it works: Participants attend two research assessments one to four years apart. The first assessment asks about your family, medical history and child’s experience with CP. During both assessments, your child will be seen by a doctor who will examine their movements. During the second assessment, your child may be given a brief learning assessment.

Who it’s for: Children aged 2-7 years old, who have CP and live in certain regions of Ontario would be eligible.

Your participation will enable researchers to study the causes of CP, identify risk factors and develop treatments and interventions to improve outcomes and care for children with CP. You will also receive a $20 gift card to Chapters after the completion of each assessment.

ACSF:SC (Research)

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What it is: The ACSF:SC tool allows parents and professionals to identify what children “can do” in terms of social communication. The ADOS is commonly used by professionals to diagnose autism, and it is important for us to understand how it relates to the ACSF:SC. Knowing this information will allow CanChild to use the ADOS in a new way and to determine children’s social communication abilities. This study will help us learn if parent ratings with the ACSF:SC tool can help predict what children’s social communication abilities will be like as they grow older. The five social communication levels found in the ACSF:SC tool will allow both parents and professionals to have a common way to classify children’s abilities.

How it works: Participants will be asked to give permission for the research team to access their child’s assessment completed in clinic, the Autism Diagnostic Observation Schedule (ADOS). Participants will be asked to rate their child’s social communication abilities with a quick and easy tool, the Autism Classification System of Functioning: Social Communication (ACSF:SC).

Who it’s for: Parents or guardians of children between their 3rd and 6th birthdays, who have had an Autism Diagnostic Observation Schedule (ADOS). You will have an opportunity to use the ACSF:SC to identify your child’s social communication abilities.

You will receive a $20 gift card to Chapters upon completion of the study.

Questions? Want to participate? Contact Angela Kielbowski via phone at 905-728-1673 x 2547. Don’t forget to constantly check back to our Research & Innovation page for updates and further research.

Wondering what other resources are available to you? Check our resource page for a complete listing!

Washing windows creates clarity about how “really good things” get done.

Saturday morning, sunshine and window washing allowed me time to reflect on the fantastic news contained in the 2019 Ontario Budget. It is official: Grandview Children’s Centre’s Phase 2 construction funds will flow from the Province of Ontario.

Grandview’s expression of gratitude to the Government for this wonderful news has resulted in us receiving criticism as complex concerns remain in the Province.

The Grandview Way = Partnerships

The Grandview way is to acknowledge and celebrate every inch toward a goal and we celebrate and thank the many people who have previously worked and continue to work to make this new facility a reality.

We partner every day at Grandview with children, youth and their families to solve complex, difficult and challenging issues.  There are currently many challenges before us and before those we serve, and we will address those challenges in the way Grandview always has; with respect, facts, analysis and collaboration to find solutions.

Today, GRATITUDE for delivering the much needed new Grandview facility to the children and families in Durham is exactly what we feel. We know that over the last 10 years it has taken countless individuals across all political parties to get the green light for Phase 1(completed) and Phase 2 funds to construct this urgently needed new facility.

Partnerships = Growth for Grandview and our Kids

Grandview has been here for children, youth and their families since 1953 and we are building and growing to ensure that we remain accessible for families for decades from now.  All levels of government have come together across all party lines to support this dream. Funds have been committed from all of the Durham Municipalities, the Region of Durham and The Province. With the Province making Grandview Children’s Centre a priority capital project in the 2019 Ontario Budget, we can now proceed with a request to the Federal Government to join in the building of this true community hub.

This “really good thing” belongs to the children and youth of Durham with special needs and their families. Family voices have loomed large in every moment of advocacy over the 10 years it has taken to get here.

The community fundraising portion to build this facility is significant and across Durham and beyond, those supporting the Believe Campaign have astonished us with their generosity and kindness and continue to do so as we work to close the remaining 5 million dollars of our 20 million dollar campaign.

We are Grateful for “really good things”

“Really good things” get done by people of all political stripes and perspectives coming together to do the right thing at the right time for the right reasons. This “really good thing” makes all of us at Grandview Children’s Centre feel very grateful.  Today, I am left with shining windows and clarity on the importance of expressing gratitude.

Thank you,

Lorraine, CEO

Do you know a Grandview Kid who will be attending college or university this Fall 2019?

Our educational partner, Campbell Children’s School, is offering its annual “I am a Promise” Scholarship Award to past and present Grandview Kids planning to attend post-secondary education in the Fall of 2019! This award was created by Ruth Althouse, the former principal of Campbell Children’s School.

The purpose of the “I am a Promise” award is to encourage and assist students with physical disabilities and/or speech disorders who are entering or continuing post-secondary education.

Eligibility Requirements:

1. The applicant shall be a former student of Campbell Children’s School and/or a former or current client of Grandview Children’s Centre.
2. The applicant shall have made application to attend a Community College or University in September or the applicant is returning to a Community College or University in September.

How to Apply:

Applications or Nominations must be submitted by May 31, 2019, and indicate the Community Colleges and/or Universities to which the student has made applications.

The application can be found here: I am a Promise Application Form.

Send the award application or nomination to:

Campbell Children’s School Authority

600 Townline Road South

Oshawa, Ontario

L1H 0C8

The Process:

A Selection Committee consisting of a minimum of three people representing Campbell Children’s School, Grandview Children’s Centre, and the Founder, will review the applications and choose up to two people who meet the requirements. If more than one recipient is chosen, the Committee will decide on the financial allocation of the Award.

Please advise the committee when you know to which Educational Facility you are accepted. Award(s) will be presented in June.

For additional information, please contact, Campbell Children’s School: 905-576-8403 and check our  I Am A Promise Eligibility document.

Spring 2019 Update

Grandview Kids Autism Program- Journey to Potential

Since 1953, Grandview Children’s Centre has been entrusted with supporting families with children and youth with physical, communication and developmental needs access the treatment and services they need to thrive and succeed.

In all that we do at Grandview, the foundational focus of our medical services, treatment, care, and support carefully considers how children, youth and their families can both fully participate in life activities and enrich their life experiences. This life span approach supports children and youth and their families to participate in real life situations and anticipates the transitions over their life course.

We have come a long way and today we provide multiple medical and other multi-professional assessments, treatments, rehabilitation services, supports, and specialized clinics. Grandview has successfully navigated 6 decades of complex shifts and changes in the paediatric health care system. Like the children, youth, and families we serve, we are resilient, we have thrived, we have grown, we have led and we continue to learn and advance.

The Grandview Kids Autism Program

At our core, the Grandview Team remains committed to supporting clients and families to make their dreams and the possibilities for their children come true. The recent changes to the Ontario Autism Program have challenged us to ensure that children, youth and their families can continue to access Autism Services with a trusted multi-professional team wrapped around them at Grandview Children’s Centre.

The Journey to Potential Autism Services Program at Grandview will be built on that same foundation. We have imagined the program mapped across 4 life stages:

• Setting the Course (early years)
• Moving Forward (school readiness)
• On My Way (school age)
• Future Focused (adolescents and young adults)

Our Autism Program Team

Our highly credentialed, skilled, and accredited Autism team consists of the following professionals:

Behaviour Consultants

Behaviour Consultants at Grandview are Board Certified Behaviour Analysts (BCBA) and have a Master’s degree in Applied Disabilities Studies, Psychology, or a related field from a university of recognized standing with an academic curriculum emphasizing Applied Behaviour Analysis.  Behaviour Consultants at Grandview are also required to have a minimum of three years of experience providing clinical oversight to behaviour analytic services.

On occasion, we may employ Behavioural Consultants who are working towards obtaining their Board Certification. These clinicians are supervised by a BCBA while they work towards their full certification.

Autism Therapy Assistants

Autism Therapy Assistants (ATAs) at Grandview have an undergraduate degree in a related field (Psychology, Child Studies, Behavioural Science, Communicative Disorders Assistant) and have completed Registered Behaviour Technician training. Grandview ATAs also have 1-3 years of experience working with individuals with Autism Spectrum Disorder and implementing behaviour analytic interventions.

Other Paediatric Experts

In addition to our BCs and our ATAs, we also have expert paediatric Grandview Speech-Language Pathology (SLP), Occupational Therapy (OT), and Physiotherapy (PT) teams who are ready to serve you and your child.

Building our Future Together

While we have a tremendous number of exciting and innovative program and service ideas, we want to co-create the new Autism Program with you, the families who will be purchasing the programs and services. We do not presume to fully understand the services and all of the ways in which you will want to access them in this new Autism Fee-for-Service system.  In everything we do at Grandview, we work hard to be thoughtful and purposeful in our planning. We cannot do that without you.

We will be hosting two (2) Open Houses and a number of Focus Groups over the coming weeks with a plan to begin to offer new programs and services for purchase in early May.

Open Houses

Please watch for more details about our upcoming two Open Houses. These events are intended to welcome families in to visit and explore two of our delivery locations (Oshawa and Ajax). These sessions also offer a closer look at the Grandview Kids Autism Programs and an opportunity to meet members of our team:

• Monday, April 29th, 5:30 to 7:30 at our Oshawa location
• Thursday, May 2nd, 5:30 to 7:30 at our Ajax location

Focus Groups – Events complete

Registration is open to families who wish to participate in our Family Advisory Committee led Focus Groups aimed at understanding preferred Autism programs and offerings. (Please note, for each event, a maximum of 15 tickets are available, and families can RSVP a maximum of 2 spots.)

• West Durham – Ajax location

Tuesday, April 16th 1-2pm

Tuesday, April 16th 4-5pm

• Central and East Durham – Oshawa location

Wednesday, April 17th 1-2pm

Thursday, April 18th 6-7pm (Registration Full)

• North Durham – S.A. Cawker Port Perry location

Thursday, April 18th 4-5pm

Registration is OPEN – Therapeutic Recreation Autism Programs

For families looking to register and purchase Autism programming, we know you are anxious to get started, and we are too!

Right now, before the new Journey to Potential Autism Program offerings are ready for registration, we do have a number of existing fee-for-service Therapeutic Recreation Programs for your consideration and registration.

• Grandview Kids Camp for Kids with Developmental Disabilities including Autism  (Ages: 4-6 / 7-9 / 9 -12)
  Enjoy active games, crafts, sensory and outdoor play, music, swimming, and drama with your child’s unique abilities in mind. Develop physical literacy skills, engage in facilitated social interaction and learn transferable play skills.
• Active Start for Children with Developmental Disabilities including Autism (Ages: 1.5-3 / 4-6)
  Learn and practice physical literacy skills and group participation skills using instructional time, active play, and game-based activities. Click here for a summary of weeks one through ten (1 – 10)
• Let’s Get Active for Kids and Teens with Developmental Disabilities including Autism (Ages: 8-12 / 13-18)
  Activities that promote physical activity, physical literacy, and socialization.
• Beyond the Walls for Teens with Autism (Ages: 13-18)
  Activities that encourage independence, wellness, improved mental health, community involvement, joy, and resilience.

Click here for full program descriptions and details, and to register.

Parent Resources at the Ready

We will continue to keep you informed and connected to helpful information about the Government of Ontario Autism Central Intake and Registration Team  that launches April 1, 2019, and to Autism Ontario and the role they can play to help families navigate services and the new program processes.

Here at Grandview Children’s Centre, our Service Navigation team is ready to help you to access information.

• Call directly – Service Navigation at 905 728 1673 extension 2468
• Email – service.navigation@grandviewkids.ca

I want to reassure families accessing the multitude of other Grandview programs and services that we remain fully committed to excellence across all of our services and supports.

I sincerely look forward to meeting you at an upcoming Open House or a focus group session.

Lorraine Sunstrum-Mann, CEO Grandview Children’s Centre

Today, Grandview announced that it will be the first public organization in Durham Region to have a universally accessible emergency Epipen at its Oshawa headquarters.

“Although our focus is on child development, the foundation of child development is the ability to live and learn in a supportive environment. We truly are thrilled to move forward to help protect the health of those with severe life threatening allergies,” says Dr. Carolyn Hunt, Developmental Paediatrician and Medical Director at Grandview Children’s Centre. “It can take time for children with developmental and intellectual disabilities to learn skills related to independence, which for some includes carrying an Epipen. We will remain a nut sensitive environment but having the Epipen onsite, in a secure alarm accessed location is most reassuring.”

Anaphylactic allergy affects 3 to 5% of Canadian children. Here at Grandview Children’s Centre, expert paediatric staff work with children with special needs, including autism, ADHD and cerebral palsy. Many of these children with complex needs also have anaphylactic allergies to peanuts, eggs, milk and much more. Grandview also provides feeding assessments and use food during some of these assessments. It has always been a concern what might happen if a parent were to forget their child’s Epipen should they have a reaction here at Grandview.

As a result of careful research and collaboration, as well as technical support with research from the Durham Region, Grandview is thrilled to launch our first universally accessible emergency Epinephrine device. This device will be available to any member of the public who witnesses someone at Grandview having an episode of an emergency anaphylactic allergy.

All of Grandview’s staff are trained in first-aid and emergency recognition and management of an allergy. In addition to our staff, parents and caregivers will also have access to this emergency, alarm monitored Epipen if their child is having a reaction.

“Once again, Grandview’s Medical Director Dr. Carolyn Hunt is leading important safety initiatives for paediatric excellence in Durham,” says Lorraine Sunstrum-Mann, Grandview Children Centre’s Chief Executive Officer. “I’m proud of the leadership consistently demonstrated by our Grandview paediatric experts within the walls of Grandview as well as across Durham and Ontario when it comes to innovation and quality care.”

We look forward to other agencies and communities within Durham Region following our lead on this project. We also would like to thank the city of Hamilton for taking the provincial lead in this important project. We plan to roll out emergency Epinephrine devices across our six sites over the coming months.

The Grandview Children’s Foundation is excited to announce the launch of the Believe Campaign, a $20-million community fundraising initiative to build and support a new Grandview Children’s Centre in Ajax.

The demand for Grandview Children’s Centre’s life-changing treatment and rehabilitation services has been exceeding the facility’s capacity for some time. As the only treatment centre of its kind in Durham Region, Grandview Kids must meet the needs of 10,000 children and their families annually, including over 3,300 kids on growing wait list.

The success of the Believe Campaign will mean that we can open the doors to a much larger Centre and welcome so many more families by 2022.

“The impact Grandview has on the community is far-reaching. Our clients are your children, your grandkids, your neighbours, our future generation so the support we have received thus far from the residents and business owners of Durham Region is no surprise,” explained Bryan Yetman, Grandview Children’s Foundation Chair. “Until now, the Foundation has been operating in a quiet campaign mode but the support from the community has been loud and clear.”

$14.5-million of Grandview’s $20-million goal has been achieved

“The formal launch today not only brings awareness to the critical need to build and support a new Grandview, it is also a celebration,” explained Brigitte Tschinkel, Executive Director of Development for Grandview Children’s Foundation. “Reaching nearly three quarters of our fundraising goal is a major milestone and we wish to thank all those who’ve made a donation, big and small. An outstanding total of $14.5-million of Grandview’s $20-million goal has been achieved, but we still have a long way to go”

The province has approved the project and Grandview Children’s Foundation is raising $20-million through the community Believe Campaign to help build and support the New Grandview Kids.

“The Grandview Children’s Foundation continues to work to connect the needs of Grandview Kids with generous donors and we are very thankful for the impact the donors make each year,” says Lorraine Sunstrum-Mann, Chief Executive Officer. “The new Grandview will provide better space for the provision of the specialized services and supports our clients urgently need. We are so excited for what this means for the future of Grandview Kids.”