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Posted March 21, 2022

Director, Alfred Ng, shares his son’s story this purple day

Awareness Days

Written by Grandview Kids’ Director, Quality, Risk, Continuous Improvement, Alfred Ng


March 26 is Purple Day, a day created to increase understanding about epilepsy and eliminate its stigma.

Epilepsy is a neurological condition characterized by recurrent seizures. A seizure happens when abnormal electrical activity in the brain causes an unwanted change in a person’s being or behaviour.

Affecting people of all ages and races – over 50 million people worldwide have epilepsy. With an estimated one in every 100 Canadians diagnosed, you likely know someone living with epilepsy.

My son, Cameron, has a very rare form of epilepsy called continuous spike wave syndrome. Cameron is a sweet, caring 11 year who loves music, video games and playing with his little sister Evelyn.

Evelyn (left) and Cameron (right).

To know Cameron is to love him. But to see him, you would not immediately understand his daily challenges. Epilepsy is an invisible condition for many – it leaves little apparent visible differences but can affect a range of functions. Cameron has visited Grandview a few times, meeting staff and experiencing some of our special care and ‘sparkle.’ He was happy to tell #TeamGrandview more about epilepsy in recognition of Purple Day.

Dad: Cameron, what do you want people to know about epilepsy?

Cameron: I go to Sick Kids and take medications but other than that, people with epilepsy are just like everyone else – we just want to have friends and have fun. We do our best.

The key for interacting with individuals with epilepsy is, in many ways, the same for anyone. Do so with love, patience and empathy. Be a friend, have some fun, and do your best, as Cameron says.

A message from Grandview Kids CEO, Lorraine Sunstrum-Mann

The theme for this year’s National Nursing Week in Canada is #WeAnswerTheCall to reflect the courage and deep commitment of nurses across Canada. The Canadian Nurses Association (CNA) developed the theme to showcase the many roles that Canadian nurses play in improving Canadians’ health across many sectors and settings. 

I value and respect all nurses’ impact in all practice settings. This year, I expressly acknowledge the incredible efforts of Nurses working the last lines of defense in critical care units and COVID special care units across Canada. The pace is relentless, and the toll immense as the virus has shown no mercy. Nurses continue to show up to save lives. When that is not possible, they have been the final human connection to thousands of people taking their last breath while simultaneously supporting their patient’s loved ones virtually through their profound grief. The toll it takes to express kindness and compassion amid the pressure and demand of delivering complex critical care is a demand few will ever know. Nurses have been #AnsweringTheCall for over a year. I support the call for a review of the decisions related to Bill 124, which has minimized the value we place on nursing expertise. They have shown up and are still standing for us; I speak out and stand with them. 

I have been a Nurse for 33 years. 

Grandview Kids CEO, Lorraine Sunstrum-Mann

I have had the honour of practicing in direct care and leadership roles in Trauma, Critical Care, Emergency, General Medicine, Nephrology, Paediatrics and Women’s Programs. I have been a Chief Nursing Officer and now a CEO. People often ask if I miss being a nurse, and they are usually shocked to know I am still an active Registered Nurse. I explain how nurses practice across many domains ~ research, direct care, education and in my current area of practice, administration. The education and skills required to care for each person across settings can be translated to an organization or a population, and nurses in administration roles impact health policy and health outcomes in significant ways. I LOVE being a nurse. I have enjoyed each domain I have had the privilege of working in. Being the CEO at Grandview Children’s Centre provides the opportunity to bring a nursing perspective to the care and support of the children, youth and families who access the paediatric rehabilitation and other services and programs we offer. That lens combined with the expert physician, health discipline, professional and administration staff across our talented teams makes for a rich, evidence-informed model of care. For 33 years, nursing has been a gift in my life, allowing me to meet amazing people like the Grandview families and team. I am proud to continue to #AnswerTheCall.

In celebration of International Women’s Day (March 8) and the inaugural Canadian Women Physicians Day (March 11), we honour excellence within the Grandview Kids women-led Medical Services team. This month, Grandview Kids welcomes its fourth female developmental paediatrician to its ranks, offering improved access to clinical expertise and support for the community it proudly serves.

Dr. Nicole Fischer joins Grandview Kids on March 23, under the leadership of Medical Director and developmental paediatrician, Dr. Carolyn Hunt. The team also comprises developmental paediatricians Dr. Shannon Knights and Dr. Abby Siapno.

I am proud to lead this team of women professionals, who make a difference every day with their expertise and caring. Developmental paediatrics is a specialization that requires intense education and a sincere passion for helping kids, who often reach us at a critical point in their lives. We are humbled to use our knowledge to provide families with answers, support and care to enable their children to live life to the full potential.

Dr. Carolyn Hunt, Medical Director and Developmental Paediatrician

This all-female, powerhouse group of doctors provides specialized care for children and youth with a wide range of developmental needs/disorders/disabilities. These needs range from cognitive or learning, global developmental, autism, motor issues, as well as genetic, language, hearing, visual and behavioral disorders. Developmental paediatricians provide consultation and work closely with others in a child’s or youth’s “circle of care,” integrating information from families, other specialists and health discipline team members. They advocate for optimizing child and youth abilities within the family, school or daycare, culture and community.

Meet the Grandview Kids Developmental Paediatricians

Dr. Carolyn Hunt, Medical Director and Developmental Paediatrician

Portrait of Dr. Carolyn Hunt

Dr. Hunt earned a Medical Doctorate at McMaster University, later completing a Residency at the University of Western Ontario and paediatric fellowship at The Hospital for Sick Children. She worked as a developmental paediatrician at Holland Bloorview Kids Rehabilitation Hospital before joining Grandview Kids in 2005, subsequently taking over as the Centre’s Medical Director in 2008. In this role, she supervises the Medical Services team, who deliver over 5,000 visits (of Grandview Kids’ total 100,000 visits) to children/youth with disabilities per year. Dr. Hunt’s research has been published in several medical journals, and she chairs Grandview Kids’ Research Committee. She is an active member of the Physicians of Ontario Neurodevelopmental Advocacy (PONDA) group. Dr. Hunt also acts as an Associate Professor within the University of Toronto’s Paediatrics Department, previously teaching at Ontario Tech University.

Dr. Shannon Knights, Developmental Paediatrician

Portrait of Dr. Shannon Knights

Dr. Knights completed her undergraduate degree in Life Sciences, as well as Medical Doctorate at Queen’s University. Her postgraduate medical training was completed at the University of Toronto, including paediatric residency at The Hospital for Sick Children and a fellowship in Developmental Paediatrics at Holland Bloorview Kids Rehabilitation Hospital. Dr. Knights successfully completed her Royal College subspecialty examination in Developmental Paediatrics in 2015, working at Grandview Kids since then. She sits on Grandview Kids’ Research Committee, and is a co-investigator in the provincial CP-NET Research Program. Dr. Knights holds a Clinical Adjunct Assistant Professor position at the University of Toronto. Since 2019, Dr. Knights has been the Head of the Community Section of Developmental Paediatrics, and is actively involved in teaching medical trainees in the field of Child Development.

Dr. Abby Siapno, Developmental Paediatrician

Portrait of Dr. Abby Siapno

Dr. Siapno is a Developmental Paediatrician. She trained as a physical therapist and paediatrician in the Philippines before moving to Canada. Dr. Siapno attended McMaster for a paediatric residency, completed her Canadian examinations, and went on to do a fellowship in Developmental Paediatrics at The Hospital for Sick Children and Holland Bloorview Kids Rehabilitation Hospital. She has passed the prestigious Royal College Examinations in Developmental Paediatrics. Dr. Siapno leads Grandview Kids’ Ajax West team, providing resources to families and looking for innovative solutions to communicating with families. Outside of work, she actively volunteers for the Speaking of Dog rescue as a foster parent for dogs looking for their fur-ever home.

Dr. Nicole Fischer, Developmental Paediatrician

Portrait of Dr. Nicole Fischer

Dr. Fischer possesses a Medical Doctorate, Masters of Science in Occupational Therapy, and Undergraduate in Biomedical Sciences. She is currently finishing her fellowship at Holland Bloorview Kids Rehabilitation Hospital, and previously completed her residency in paediatrics at the Alberta Children’s Hospital. Dr. Fischer’s work has been featured in medical journals and conferences. She’s received multiple awards and honours, including the 2019 Canadian Paediatric Society Developmental Paediatrics Resident Research Grant. Dr. Fischer’s commitment to paediatric care is also evidenced in her vast volunteer experience, including multiple student teaching and mentorship roles throughout her residency and fellowship. She’s also done placements in Yellowknife, Northwest Territories and rural Uganda.

About Canadian Women Physicians Day

March 11, 2021 is the first-ever Canadian Women Physicians Day, started by Canadian Women in Medicine, which aims to connect and support women physicians in a way that allows them to thrive in all aspects of their lives: professional and personal. Currently, more than 40% of Canadian physicians are women. The celebration coincides with the date of licensure of Dr. Jennie Trout, the first woman licensed to practice medicine in Canada. Dr. Trout advocated tirelessly for medical education for women.

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