During the month of March, we celebrate National Cerebral Palsy Awareness Month to recognize and support the many individuals who live with Cerebral Palsy (CP). CP is a permanent physical disability impacting a person’s mobility and muscle strength. The degree of its impact ranges greatly on an individual basis, from mild to severe. Early intervention, therapies, use of Botox and even surgeries can help a person’s ability to deal with pain management and functionality in daily life. CanChild states that approximately 1 out of every 400 individuals in Canada are diagnosed with CP, and it is the most common physical disability in children.
Gavin’s Story – Shooting for the Stars
Gavin and his twin sister are 7 years old and were born six weeks prematurely. As preemies, baby milestones were adjusted to take into consideration their gestational age. His sister was meeting milestones when adjusted to their due date, but Gavin was not. At 18 months of age, his paediatrician referred him to Grandview Kids to see Dr. Hunt. He was diagnosed with spastic cerebral palsy, and Grandview Kids was able to provide his family with support through physiotherapy (PT), occupational therapy (OT), speech-language pathology, recreational therapy, and social work. He had difficulty in using his trunk and legs and holding his head up, and he currently uses a wheelchair for long distances, a walker, and ankle-foot orthotics for support. With continuous PT, he has increased his muscle strength and is now working on coordination and balance. OT helps him work on his fine motor skills through fun activities that develop his colouring, printing, pincer, and feeding skills.
Gavin’s parents recognize the way Grandview Kids has been there to support him and his family over the years. “It’s nice to see people still care. His therapists want him to succeed, so they go above and beyond!” says his dad, who also happens to have CP. “Each therapist brings their own unique ‘quirks,’ and it benefits him and pushes him more. They have great qualities and challenge him.” Gavin was able to take his first steps with his physiotherapist, and it wasn’t just one step, but five amazing first steps.
What does Gavin want to be when he grows up? His parents say that he is not letting CP keep his dreams modest. He is shooting for the stars and wants to be an astronaut. Gavin inspires his parents, who share words of encouragement with other parents of children with CP. “It might hurt in the beginning, but it’s worth it – push them! They come out stronger & smarter. They must think more and expend more energy than the average person, but it pushes their brain capacity. Have that ‘money is no object’ mentality. You will be rewarded, but be patient as it is not an overnight thing; it will take work.”
Check out more Grandview Kids articles
- October: Dates of Significance
- Acknowledging holidays/celebrations in October
- October 6: World Cerebral Palsy Day
- October 20-26: Invisible Disabilities Week – Zayla’s Story
- October 20-26: Canadian Down Syndrome Week – Ariana’s Story