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Every Child And Youth Living Life At Their Full Potential

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Posted April 14, 2020

Reflection In A Time Of Uncertainty

News

Like each of you, the team at Grandview is processing the reality of the massive disruption/fear/anxiety COVID-19 has introduced into our lives. We now know that this is going to continue for longer than we initially imagined.

The projections for COVID impacts across Ontario that were shared during the April 3rd Provincial briefing are staggering. We must all do our part to help. In fact, knowing that each of us has the power to make a difference is part of what I am writing to you about today; power and freedom.

I am reflecting on the famous quote from Viktor Frankl,

“Between stimulus and response there is a space. In that space is our power to choose our response. In our response lies our growth and our freedom.”

In uncertain times when we feel so out of control, it is difficult to envision ourselves empowered or free.   It is important to remember what we are in control of.

I have had the distinct honour of knowing many Grandview families. I want to share what I would say are common and consistent “isms” about them

•       They love their kids, I mean LOVE their kids. The “walk through fire” kind of love

•       They KNOW their kids better than anyone. Every little nuance that others would take for granted or even miss has clear meaning for you about your child

•       They want the absolute BEST for their kids

•       They know when to just step back and take a break- when all the therapy and appointments and constant work gets to be too much

•       They take nothing for granted- every inch forward is reason to celebrate

•       They are not afraid to reach out and ask for help when needed to keep balance in turbulent times

•       They sometimes feel lonely, sad, overwhelmed and tired of fighting or advocating for what others easily access and need to dwell there for a bit and then move forward

…the list goes on and on

I mention these “isms” because THAT list of “isms” seems like the current required skill set to manage through this pandemic. The responses you have chosen along your child’s life journey have armed you with the power to thrive during difficult days ahead.

We are here at Grandview, establishing new ways to offer our services to you and working to be sure you can connect with us for support.

We feel that the most important thing for you and your family right now is your own mental and physical health.

We know you will make the best choices for your family in terms of what can be accomplished with school lessons and therapy. Give yourself a huge break.  I read a great article the other day that suggested when we look back on these times we won’t remember who got all the lessons completed or who used the time to learn something new (what a privilege!) but rather we will be measured on how we treated each other, how children, seniors and those living with vulnerabilities were cared for and how we reached out (virtually mostly) to stay connected.

We do have the freedom to choose how we control some of this. Grandview families you are POWERFUL!

Please stay connected with us through social media or the online parent support group on Facebook to discover the opportunities emerging to “Go to Grandview” virtually. Your Grandview team is here and will be here as we travel the weeks and months ahead together.

The Grandview staff feels fortunate to have each other and the opportunity and privilege to continue to work for and with Grandview kids and their families. The road ahead is uncertain and answers are not forthcoming in more than a few days at a time. That is our reality. A few things are certain, you have the skills, Grandview is here for you and we will continue to be.

With deep care,
Lorraine

Dear Grandview Community,

We continue to find ways in which to connect with you and work remotely during these uncertain times.

Thank you for doing your part to maintain physical distancing.

For those of you who are self-isolating at home, thank you for your vigilance. Many Grandview families have the added stress of caring for medically complex children and we know how much they need all of us to do our part to keep ALL kids healthy and safe.

Daily across social media sites, multiple tools, and resources are being posted offering online learning and supports for kids and families.

We know that for many Grandview families many of these resources are not accessible or appropriate.

We also know that many parents are stressed trying to fit in “school work “ and therapy in addition to working as essential services, working from home, managing care routines and responding to new behaviours that may be arising with all of this disruption.

It is okay to not be on top of all of this. It is okay to feel overwhelmed and scared.  It is okay to not be okay right now.

It is one of the reasons we will be reaching out to you in many ways to check in.

Grandview is working to share resources meant for kids with communication, physical and developmental needs.

We also want to share resources for parents and caregivers to support your self-care as a healthy YOU is critical for your child right now.

Here is a great parent/caregiver website we really like.
https://ontariocaregiver.ca/find-support/peer-support/?fbclid=IwAR2rBaSQHla36MkqEMg2SWOnkSwrceBcbpktmIQvTG80TZuvw22XuhHn9Po

You can also try the Care Mongers COVID-19 Response Phone Line at 1-888-573-0982 if you need help or are isolated during the pandemic.

In addition, the Grandview Online Parent Support (OPS) Facebook page is a tremendous parent resource for Grandview families.  If you are not already a member here is how to sign up:  Please visit  https://www.facebook.com/groups/Grandview.OPS/ and click join. Then check your Facebook Messenger for some identifying questions or email andrea.belanger@grandviewkids.ca with your child’s name or client ID and your Facebook profile name so your information can be verified.

We will continue to reach out to you and do everything we can to help.

You are in my thoughts and the thoughts of the entire team at Grandview

With care,
Lorraine

For many teens across Durham Region, the recent PA Day meant extra time to sleep in, hang out with friends, or maybe play some sports or video games. For Grandview kid Kurt, 13, it meant testing out a dream job.

A plan was devised back in October at the Grandview Youth Advisory Committee’s Halloween event to have Kurt step in as CEO for the day; job shadowing Grandview Children’s Centre CEO Lorraine Sunstrum-Mann.

Diagnosed with hydrocephalus at birth, Kurt spent much of his childhood at Grandview, participating in physiotherapy and occupational therapy treatments. He also attended senior kindergarten at Grandview’s co-located educational partner, Campbell Children’s School. Needless to say, getting the chance to come back to Grandview as CEO was a “cool experience.”

During his time as boss, Kurt took part in meetings with Lorraine.

“There are so many people that Lorraine has to talk to, report to and talk about the centre with. She’s busy!” said Kurt.

One of the main highlights of his day was meeting with Grandview Kids and Campbell Children’s School’s Technology Lead Shaun Maddock and the Grandview robot Joy.

“I liked the fact that Joy can drive around,” Kurt explained. “I took Joy to see other kids and got her to talk to them and if they wanted her to dance, I’d make her dance.”

Kurt also attended the official opening of Lakeridge Health’s new 22-bed Mental Health Unit at the Ajax-Pickering Hospital, meeting the Minister of Health, The Minister of Finance and the President of the Treasury Board along with Durham MPP Lorne Coe and hospital dignitaries. Lorraine describe how heartwarming it was to watch the group treat Kurt as a VIP, going so far as introducing him to the crowd as a special guest.

Kurt made the most of his opportunity to speak to political leaders by advocating for Grandview.

“I told them the wait times are too long,” Kurt said. “They seemed to understand that there are many Grandview kids who need help.”

His time spent with Lorraine and at Grandview made Kurt more confident in choosing his future career.

“I know I want to do something with the community, helping people,” he said.

“Spending the day with Kurt was wonderful. What was supposed to be a rich day of learning for him turned out to be all about learning for me,” Lorraine explained. “Kurt impressed me with his curiosity about the work we do at Grandview and especially about why we do it. His excitement about helping other Grandview kids was touching and impressive.”

Does your Grandview kid have a dream job they’d like to give a try? Email communications@grandviewkids.ca

Lorraine with a grandview kid
Lorraine with a grandview kid
Joy the robot interacting with people at Grandview in Oshawa
Joy the robot interacting with people at Grandview in Oshawa
Lorraine and a Grandview kid pose for a photo with older men in suits.
Grandview kid speaking with older men in suits
Grandview kid speaking with Christine Elliott

Grandview Kids welcomed three grade nine students to #TeamGrandview on November 6, 2019 for Take Your Kid to Work Day.

Ethan, Noah and Kyra joined their moms on the job to see what goes on at Grandview Children’s Centre. Ethan and Noah spent their day at the Oshawa headquarters, getting a chance to sit in on therapy appointments, spend time volunteering in the classes at Campbell Children’s School (Grandview’s co-located educational partner) and they were able to get their hands on some of the latest technology gadgets Grandview kids has to help children with physical, developmental and communication needs.

Kyra spent her day up in our north satellite in Port Perry. It is a smaller location but still busy and full of laughter and life like the other sites.

Reflecting on his time spent at Grandview, Ethan said he felt welcomed. “Everyone was very nice,” he explained. “It was cool to see Tulip the therapy pony and learn how to program the Campbell Children’s School iPal. I see how my mom loves going to work everyday!”

Noah commented on the skill set the staff had, noting “they all seemed to know what they were doing and how to do it.”

Thanks for joining us Ethan, Noah and Kyra! You are welcome back anytime.


Congratulations to Dr. Shannon Knights! We are thrilled to announce that she has been appointed as the new Head of the Community Section of Developmental Pediatrics. This section brings together Developmental Pediatricians across the GTA and allows us to collaborate, learn and advocate together.  We are so happy to have Shannon as the leader of this group, representing the needs and voices of our Durham Region community and #TeamGrandview.

I attach the announcement from the Head of the Academic Centre based leader, Dr. Darcy Fehlings.

From Dr. Fehlings:

It is with great pleasure that I would like to announce that Dr. Shannon Knights has accepted the position as head of the Community Section of Developmental Paediatrics in the Division of Developmental Paediatrics.  Shannon is an excellent community based Developmental Paediatrician working at Grandview Children’s Treatment Centre.  I know she will provide excellent leadership for the community section in this role.  I would also like to acknowledge the excellence that Dr. Cynthia Goldfarb has brought to the role.  I know that all of Dr. Goldfarb’s hard work and initiative will help Shannon be successful in the role going forward.  Please join me in congratulating Shannon!

Don’t worry – Shannon will still be here with us at Grandview in her current role, continuing to see lots of GrandviewKids and supporting medical services in our goals for an inclusive and broad range of medical services for children in Durham Region.  This appointment raises our profile with our academic community and we look forward to seeing what further opportunities this brings.

Congratulations again Shannon on this terrific leadership opportunity.

Dr. Carolyn Hunt

Developmental Pediatrician

Medical Director, Grandview Children’s Centre

Research Chair

Associate professor, University of Toronto, Department of Pediatrics

In April 2019, Grandview Children’s Centre hosted the first of many Family Focus Groups so that our team could hear first-hand from our Grandview families what they believed would be helpful offerings under the new fee-for-service Grandview Kids Autism Program – Journey to Potential.  Attendance across four events was very good, and we received thoughtful, engaged, and constructive feedback from 39 participants.

What we Asked

Families were asked to share the following:

  • What Autism services has your family received, either at Grandview or in the community?
  • What programs/services delivered the best results?
  • What programs/services did not deliver the results you expected?
  • What is the gap in the community for Autism Service offerings?

Families were also asked to identify what, if any, new programs and services that they would like see offered and delivered by Grandview

What we Heard

The feedback was very positive and will be useful as we move forward. Overall we were thrilled to hear that families saw Grandview as a welcoming, respectful, and thoughtful environment, and one where staff is appropriately trained and supervised.

Other key learnings from the sessions were:

  • All of the families who participated in the focus groups had received at least one service from Grandview – Autism Spectrum Disorder diagnosis, speech-language pathology, occupational therapy, physiotherapy, therapeutic recreation, behaviour services.
  • Families appreciated Grandview’s “wrap-around”, integrated approach to developing their plans.
  • Some families seemed to know what services they wanted while other said they wanted an assessment that looked at a number of areas of need to help them determine their next steps or where to start with service.
  • Feedback with respect to things that have not worked related to scheduling, location of program delivery, and duration of service.

Some gaps identified by participants included the need for:

  • More community supports
  • Respite support and options
  • Recreational/social groups for children under 4 years of age
  • More community-based groups for adolescents

An important action taken at the Focus Groups was to capture a list of the families’ suggestions for new or improved programming across a variety of service categories. Some of the suggestions included:

  • Supports to help with the transition to school or community-based settings
  • More therapy, including groups, and a variety of activities
  • A safe supportive place for children and youth to practice recreational and social skills
  • More workshops and training sessions for parents and caregivers. The workshops to-date have helped families learn strategies to manage challenging behaviours and develop skills

If you were unable to attend the Focus Group Sessions we would still value your input. Please send your comments/questions/feedback to our Family Engagement Coordinator at FAC@grandviewkids.ca.

What Comes Next?

In an effort to increase direct engagement with families, we plan to hold more Focus Groups and facility Open Houses. These events are intended to welcome families into our Centre, to visit with us, and to explore our delivery locations.  These sessions also offer a closer look at the GrandviewKids Programs and create an opportunity for families to meet members of our team:

These will be ‘drop-in’ events and no set agenda or plan. Families are encouraged to stop by at any time during the event and to bring the kids! Keep your eye on our calendar and this site for new dates!

Our Lines are Always Open

We know that families may not able to attend focus group sessions, or open house events in person, but your feedback is very important to us. To share your ideas, or if you have questions, please reach out to our Service Navigation Team. They can be reached by phone: 905 728 1673 ext. 2468, or by email at service.navigation@grandviewkids.ca.

We will continue to keep families engaged as we build our future together!

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