Programs and Services

Research

Grandview Children's Centre is a supporter of discovery and innovation in research in child development and rehabilitation science. Our Research Committee identifies priority areas for research and advises where our resources and/or support should be directed.

Grandview's Research Committee:

  • Chair: Dr. Carolyn Hunt, Medical Director, Developmental Pediatrician
  • Mandy Doherty, Registered Social Worker & Professional Practice Lead
  • Lindsay Gurr, Physiotherapist
  • Janet Isaac, Clinical Manager
  • Angela Kielbowski, Childhood Hemiplegic Cerebral Palsy (CP) Integrated Neuroscience Discovery Network (CP-Net) Research Assistant
  • Dr. Shannon Knights
  • Sarah Lee, Speech-Language Pathology Assistant
  • Meghann Lloyd, PhD, Assistant Professor, Faculty of Health Sciences, UOIT & Research Associate, Grandview Children's Centre
  • Munazza Tahir, Behaviour Consultant
  • ex officio: Leslie Suite, Speech-Language Pathologist & Director of Clinical Services
  • ex officio: Lorraine Sunstrum-Mann, Executive Director
  • Recorder: Jackie Down, Medical Services Assistant

Read our Research Portfolio for a complete list of all our research projects:

Grandview Children's Centre - Research Portfolio - updated January 2015


 

Please note: Grandview is directly involved in the following research study:

The CP-NET Research Database is an Ontario Brain Institute funded research project. We are collecting information to better understand how many kids are affected by Cerebral Palsy (CP) in different parts of Ontario and what causes CP so that we can improve care and treatments.

Flyer:

 

Brochure:

Childhood Cerebral Palsy Integrated Neuroscience Discovery Network “CP-NET” – Research Database

The program is designed to improve our understanding of cerebral palsy (CP) and accelerate the development of new neuroscience discoveries.

CP-NET research studies will gather information about children with CP and their families from across Ontario. The ultimate goal is to improve the lives of people with CP and their families.

What does this study involve?
Study participants will attend two research assessments, approximately 1-4 years apart.

During the first assessment we will ask you questions about your family and medical history and your child’s experience with CP. 

We will then collect saliva samples from you and your child. We will also ask to review your family’s medical charts and collect any past brain scans your child may have had.

During both assessments, your child will be seen by a doctor who will examine his or her movements. Lastly, your child may be given a brief learning assessment during the second assessment.

Who can participate?
Children aged 2-7 years old, who have CP and live in certain regions of Ontario.

Why should you consider participating?
Your participation will allow researchers to study the causes of CP, identify risk factors and develop treatments and interventions to improve outcomes and care for children with CP.

You will receive a $20 gift card to Chapters after the completion of each research assessment.

For more information, or to sign up, please contact:

Angela Kielbowski
Grandview Children’s Centre
905-728-1673 x 2547
toll-free 1-800-304-6180 x 2547
 
info posted November 25, 2015
expires December 31, 2018
Childhood Cerebral Palsy Integrated Neuroscience Discovery Network CP-NET Research Database Childhood Cerebral Palsy Integrated Neuroscience Discovery Network CP-NET


Please note: Grandview is not directly involved in the research studies listed below

     

BeFAST or BeSTRONG

ABSTRACT:

Researchers at Holland Bloorview Kids  Rehabilitation Hospital are doing a research to learn how activity of the brain changes after two different programs of physical activity based training. They will also study change in movement and participation to see if these changes are linked to brain change.

WHAT’S INVOLVED?

- Children will have 16 sessions of training over 6 weeks (two-three times per week for 45 minutes).Each child will either have training that focuses on sports-skills like running, or training that focuses on lower limb strength.

- All children will have two scans of their brain done at Baycrest Hospital using functional magnetic resonance imaging (fMRI). One brain scan will be before the training and the second scan will be after the training. Each visit is 2 hours.

- There will be three assessments: Before and after the training, and again 4months after the training is over. Each assessment is 2.5 hours.

- At the assessments, we will look at how children move. We will also ask questions about activities children participate in, and how they feel about these activities.

WHO CAN PARTICIPATE?

Children ages 7-17with Cerebral Palsy that affects just one side of their body, or mostly their legs, and who can walk on their own without a walking aid.

Flyer:

 

Sibling Experiences in Families of a Child with a Disability Study

Abstract:

Individuals who have a brother or sister with Down Syndrome, Cystic Fibrosis, and Cerebral Palsy are currently being recruited for a research study. This study explores the experiences of a sibling of someone with a disability, including the positive experiences and some of the hardships that the sibling may face.

Siblings are often overlooked in family research; therefore the goal of this study is to better understand the everyday experiences of these siblings. With the results of this study, we hope to inform organizations and clinicians on what is important or lacking in the area of support for siblings of someone with a disability, which can result in services tailored to these siblings’ specific needs.

What’s Involved?

Participation would include an interview, which may take one hour to complete, as well as two online questionnaires, which will require an additional 30 minutes.

Who Can Participate?

Eligible participants are typically developing and have a brother or sister with Down syndrome, cystic fibrosis, or cerebral palsy. Adults and children over the age of 6 are invited to participate.

For more information, please contact:
Kristina Trandovski, BASc., MA Candidate

Psychology Department, Laurentian University

ktrandovski@laurentian.ca

or

Shelley Watson, PhD

Psychology Department, Laurentian University

1-800-461-4030, X4223, swatson@laurentian.ca

 

 

 

 

Holland Bloorview Kids Rehabilitation Hospital Autism Research Centre and the POND-Network are seeking children who have a diagnosis of Autism Spectrum Disorder (ASD, Autism, Asperger's, PDD-NOS), or Intellectual Disability (ID, DD) age 18 months to 21 years participate in:

Flyer:

Clinical Information:

Autism study

A research study to understand how genes affect the brain, body, and behavior and translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.

For more information, contact:

Susan Day Fragiadakis, M.A. Sc., Research Asssitant
416-425-6220 x 6518
sfragiadakis@hollandbloorview.ca
 

info posted November 3, 2012
updated September 20, 2016
expires March 31, 2018

Holland Bloorview Kids Rehabilitation Hospital Autism Research Centre recruitment flyer Clinical Information for Autism Research Institute study

National Physical Activity Monitoring (NPAM) Study

Flyer:

 

 

National Physical Activity Monitoring (NPAM) Study

The purpose of the NPAM study is to quantify current trends in physical activity among youth (ages 12 – 21 years) with physical disabilities and visual impairments across Canada

For more information, read the attached PDF, or contact:

Ritu Sharma, Research Coordinator
ri.sharma@mail.utoronto.ca
 

info posted October 3, 2016
expires - 

Holland Bloorview Kids Rehabilitation Hospital Autism Research Centre recruitment flyer Clinical Information for Autism Research Institute study

 

 Residential Immersive Life Skills (RILS) Study

Flyer:

 

 

What is this study about:

The goal of the study is to understand how youth feel about themselves as they grow and change over the course of a year.

 

Who can participate?

Participants in the research will:

? Be attending a residential or non-residential life-skills program or be a matched non-participating youth

? Be between 14 and 21 years old

? Have a child-onset disability

? Be able to set goals for themselves

? Speak English

 

What’s involved?

The study involves completing questionnaires and interviews.

? Participants will be part of the study for one year

? Participants will provide data four times

? Each data collection session will take about30 min

? The study will run from December 2014 to November 2018

? Participants in the research will receive $15 gift cards the first three times that they provide data and a $25 gift card the last time

For more information, read the attached PDF, or contact:

Ritu Sharma, Research Coordinator
ri.sharma@mail.utoronto.ca
 

info posted January 12, 2017
expires - 

Holland Bloorview Kids Rehabilitation Hospital Autism Research Centre recruitment flyer Clinical Information for Autism Research Institute study

 Autism Classification System Of Functioning: Social Communication (ACSF:SC)

Flyer:

 

 

Abstract

We need help from parents/guardians of children with Autism for a new study to examine the relationship between clinician-completed ADOS assessments and your own completed ACSF:SC ratings.

 

What is this research study about and why is it important?

The ACSF:SC tool allows parents and professionals to identify what children ‘can do’ in terms of social communication. This is not a tool to measure severity of autism. The ADOS is commonly used by professionals to diagnose autism, and it is important for us to understand how it relates to the ACSF:SC. Knowing this will allow us to use the ADOS in a new way, in the future, to determine children’s social communication abilities.

This study will help us learn if parent ratings with the ACSF:SC tool can help predict what children’s social communication abilities will be like as they grow older. This is similar to having a doctor predict how tall a child might be, based on measuring height at a check- up. The five social communication levels found in the ACSF:SC tool will allow both parents and professionals to have a common way to classify children’s abilities.

 

What does this study involve?

Participants will be asked to give permission for the research team to access their child’s assessment completed in clinic, the ADOS (Autism Observation schedule).

Participants will be asked to rate their child’s social communication abilities with a quick and easy tool, the ACSF:SC (Autism Classification System of Functioning: Social Communication).

 

Who can participate?

Parents or guardians of children between their 3rd and 6th birthdays, who have had an Autism Diagnostic Observations Schedule (ADOS).

 

Why should you consider participating?

You will have an opportunity to use the ACSF:SC to identify your child’s social communication abilities.

You will receive a $20 gift card upon completion of the study.

 

For more information, or to sign up, please contact:

Helena Viveiros | Email: viveiro@mcmaster.ca | Phone: 905-525-9140 ext. 27849

 

info posted January 12, 2017
expires - 

Clinical Information for Autism Research Institute study

Mapping Rehabilitation Across Canada: What Families Want

Flyer:

 

 

 

Purpose:

The purpose of this interview is to gain an in-depth understanding of the current needs, values and wants from pediatric rehabilitation (such as occupational therapy, physiotherapy, speech-language pathology) in Canada from parents of children receiving these services.
 

Procedure:

 

* What will I be asked to do?

You will be asked to participate in a telephone interview with a research coordinator or research assistant at a time convenient for you. You will be asked to share your experiences, and perspectives on pediatric rehabilitation in its current form and desires for future pediatric rehabilitation.
 

* Who is eligible to participate?

We are seeking family members with at least one child with special needs. The child needs to be less than 18 years old at the time of the interview. Children need to have received services at a pediatric rehabilitation hospital, treatment centre or similar facility in Canada.
 

* How long will it take to complete?

The interview is expected to last no longer than one hour. All interviews will be audio-recorded and can be stopped at any time.
Benefits:
There are no direct benefits to participating in this study. Families may value the opportunity to reflect on their child’s strengths and guide future goals of rehabilitation.
Risks:
There are minimal risks to you in participating in this study. Questions will focus on the positive social experiences as much as possible.
 
 
 
 
Will my privacy be protected?
Yes. All information gathered during the study is private. Any research data collected during this study will not identify you, your child, or your family. The data collected will be stored at the Glenrose Rehabilitation Hospital for a minimum of five years. Your contact information will be maintained only for the purposes of arranging and coordinating a telephone interview.
Participation:
Participation is voluntary. You can withdraw from the study at any time. Withdrawal from the study will not affect the care your child receives.
 
How do I participate?
By contacting, Tamara Germani, at qualityandsafety@hollandbloorview.ca to set up a time to complete a telephone interview.
 
Contact names and telephone numbers:
Please contact Tamara Germani (qualityandsafety@hollandbloorview.ca or germani@ualberta.ca) if you have any questions or concerns. This study has been approved by the University of Alberta Research Ethics Board on [insert date].
For concerns related to participant’s rights, please contact the University of Alberta Research Ethics Office at 780-492-2615.
Clinical Information for Autism Research Institute study